The recognition, assessment and perceptions of total pain in people with profound intellectual disabilities: A mixed methods systematic review

M Goodall, K Irving, M Nevin - Journal of Applied Research in …, 2023 - Wiley Online Library
Background People with profound intellectual disabilities are a population with complex
comorbidities. Total pain recognises the interconnectedness of aspects of pain; social …

A scoping review of research evaluating physiological information for individuals with developmental disabilities: Augmentative and alternative communication …

C Holyfield, T O'Neill Zimmerman - Journal of Speech, Language, and …, 2022 - ASHA
Purpose: Today, an ever-increasing number of technological advancements are becoming
mainstream. As the availability of technological innovations increases, so do opportunities …

Physical Fitness Variables, General Health, Dementia and Quality of Life in Individuals with Intellectual and Developmental Disabilities: A Cross-Sectional Study

M Jacinto, R Matos, B Gomes, A Caseiro, R Antunes… - Healthcare, 2023 - mdpi.com
The average life expectancy of individuals with intellectual and developmental disabilities
(IDDs) is increasing. However, living more years does not mean living better, leading to the …

Heart rate monitoring to detect acute pain in non-verbal patients: a study protocol for a randomized controlled clinical trial

ESM Kildal, DS Quintana, A Szabo, C Tronstad… - BMC psychiatry, 2023 - Springer
Background Autism entails reduced communicative abilities. Approximately 30% of
individuals with autism have intellectual disability (ID). Some people with autism and ID are …

[HTML][HTML] “BrainHeart”: Pilot Study on a Novel Application for Elderly Well-Being Based on Mindfulness Acceptance and Commitment Therapy

R Bruschetta, D Latella, C Formica, S Campisi, C Failla… - Bioengineering, 2024 - mdpi.com
The rising prevalence of mental illness is straining global mental health systems, particularly
affecting older adults who often face deteriorating physical health and decreased autonomy …

The Effect of Using Virtual Reality During Burn Dressing on Pain, Anxiety and Fear Felt in Children: A Randomized Controlled Trial

Ü Kılıç, E Tural Büyük - Journal of Burn Care & Research, 2024 - academic.oup.com
This study was conducted to determine the effect of using virtual reality (VR) during burn
dressing on the level of fear, anxiety, and pain that children would experience. This …

Identifying pain and distress in non-verbal persons with intellectual disability: Professional caregivers' and parents' attitudes towards using wearable sensors

T Øderud, ES Boysen, F Strisland… - Technology and …, 2023 - content.iospress.com
BACKGROUND: Persons with severe intellectual disability (ID) may be non-verbal and
unable to communicate pain or distress. Consequently, painful conditions may go …

[PDF][PDF] Development and Validation of the Non-Verbal Patient-Caregiver Understanding Questionnaire (NPUQ): Assessing Communication Challenges and Their …

ESM Kildal, T Nærland, SC Lahlum, A Szabo… - 2023 - osf.io
Background: How caregivers perceive the experiences of non-verbal individuals is critical
for quality of care. Despite numerous observational and proxy-reported methods to assess …

HEART RATE VARIABILITY AND PAIN: A SYSTEMATIC REVIEW AND META-ANALYSIS PROTOCOL

ESM Kildal, K Audunsdottir, HB Jacobsen, H Kang… - 2023 - osf.io
Background: Establishing a reliable pain biomarker may significantly improve care for
nonverbal patients otherwise unable to express their pain (eg, individuals with profound …

Considerations for Hospitalized Adults with Chronic Childhood Conditions

M Eckenrode, N Oakman - Care of Adults with Chronic Childhood …, 2024 - Springer
Hospitalized adults with chronic childhood conditions face additional challenges in both
pediatric and adult care environments. This chapter discusses previously unaddressed …