Experiences of peer support amongst parents of children with neurodevelopmental disorders: a qualitative systematic review

TSM Wong, S Shorey - Journal of pediatric nursing, 2022 - Elsevier
Problem Peer support is a form of social support that can address the complexities of
support needs and challenges of parenting children with Neurodevelopmental Disorders …

Quality of life and concerns in parent caregivers of adult children diagnosed with intellectual disability: A qualitative study

MI Fernández-Ávalos, MN Pérez-Marfil… - International Journal of …, 2020 - mdpi.com
Background: Previous studies have confirmed that parenting a child diagnosed with an
intellectual disability (ID) can negatively affect the parents' quality of life in several …

Exploring individual parent‐to‐parent support interventions for parents caring for children with brain‐based developmental disabilities: A scoping review

A Postma, M Ketelaar… - Child: Care, Health …, 2024 - Wiley Online Library
Background Brain‐based developmental disabilities (BBDDs) comprise a large and
heterogeneous group of disorders including autism, intellectual disability, cerebral palsy or …

Leveraging the expertise of the community: a case for expansion of a peer workforce in child, adolescent, and family mental health

HA Robertson, MG Biel, KR Hayes, S Snowden… - International journal of …, 2023 - mdpi.com
The rise in child and adolescent mental health concerns has led to the need for an
expanded workforce to meet the needs of our nation's families. Peer paraprofessionals …

Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and …

N Gore, J Bradshaw, R Hastings… - Journal of Applied …, 2022 - Wiley Online Library
Abstract Background Early Positive Approaches to Support (E‐PAtS) is a co‐produced and
co‐facilitated group programme that aims to provide early years support to family caregivers …

The Role of Community-Based Rehabilitation and Community-Based Inclusive Development in Facilitating Access to Justice for Persons with Disabilities Globally

HM Aldersey, X Xu, V Balakrishna… - … International Journal of …, 2023 - JSTOR
Community-based rehabilitation (CBR) is a multi-sectoral strategy that addresses the human
rights and inclusion of persons with disabilities. Justice is a core component within the social …

Autopsy of a telephone‐based peer support intervention: Exploring participants' perspectives of and experiences with a self‐management support model for adults …

S Ashrafi, N Deo, AKW Yip, S Seddigh… - Diabetic …, 2022 - Wiley Online Library
Aims To explore participants' experiences with and perspective of a telephone‐based, peer‐
led diabetes self‐management intervention targeting adults with type 2 diabetes (T2D) from …

Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and …

LPL Low, ANL Kwong, Y Wang, MYC Wong… - International Journal of …, 2024 - mdpi.com
Background: While the literature has highlighted the immense challenges in caring for family
members, it is still unclear what the needs of family carers of persons with intellectual …

Experiences and needs of mothers concerning their involvement in the life and care of their adult sons with mild intellectual disabilities and autism spectrum disorders …

M Boer, SAH Giesbers, N Frielink… - International Journal …, 2024 - Taylor & Francis
Objectives Parental involvement is crucial for individuals with comorbid mild intellectual
disabilities (MID) and autism spectrum disorders (ASD) who display challenging behaviour …

Supporting Older Caregivers of Adults With Intellectual and Developmental Disabilities: Perceived Effectiveness of Peer Mentors

CN Marsack-Topolewski, G Raoufi… - Families in …, 2024 - journals.sagepub.com
This study's purpose was to determine the effectiveness of relationships between a family
support navigator (FSN) and older caregivers of adults with intellectual and developmental …