Background Parents' knowledge of their child with profound intellectual and multiple
disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this …

Children with cognitive disabilities are at greater risk of experiencing pain. It has been
shown that this paediatric population often receive inadequate pain management. Pain may …

Abstract Background and Objective Children with cognitive impairment (CI) are at risk of
experiencing pain. Several specific pain rating scales have been developed to date. Thus …

Pain experiences of youth with brain-based developmental disabilities are often overlooked
and/or misinterpreted, increasing the risk for poor or inadequate pain assessment and …

Background Parents' tacit knowledge plays an important role in the care of persons with
profound intellectual and multiple disabilities (PIMD). As little is known about its nature and …

Background Caring for persons with profound intellectual and multiple disabilities (PIMD)
demands specific expertise. Tacit knowledge seems to play an important role, but little is …

Background Persons with profound intellectual and multiple disabilities (PIMD) increasingly
outlive their parents. Therefore, we designed a structured group conversation to support …

Two million children are admitted to hospital every year in the UK and between 59% and
94% will experience pain, with 27–40% of them experiencing moderate to severe pain …

Pediatric pain is challenging to assess and manage. Frequently underestimated in children,
untreated pain may have consequences including increased fear, anxiety, and …

Persons with profound intellectual and multiple disabilities (PIMD) cannot speak about their
Quality of Life (QoL), which makes it necessary to involve others. In current approaches …