Initiating technology dependence to sustain a child's life: a systematic review of reasons

D Alexander, MB Quirke, J Berry… - Journal of Medical …, 2022 - jme.bmj.com
Background Decision-making in initiating life-sustaining health technology is complex and
often conducted at time-critical junctures in clinical care. Many of these decisions have …

Tracheostomy and long‐term invasive ventilation decision‐making in children: A scoping review

C Mack, J Mailo, D Ofosu, AA Hinai… - Pediatric …, 2024 - Wiley Online Library
An increasing number of children are surviving critical illnesses requiring tracheostomy/long‐
term ventilation (LTV). This scoping review seeks to collate the available evidence on …

The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician's decision to initiate life-sustaining clinical technology …

MB Quirke, L Cassidy, D Alexander, C Walsh… - Frontiers in …, 2023 - frontiersin.org
Background Spinal Muscular Atrophy (SMA) type 1 is a debilitating condition with a poor
prognosis, though therapeutic advances are promising. Long-term ventilation is a common …

The paradox of self-efficacy and technological dependence: Unraveling generative AI's impact on university students' task completion

L Zhang, J Xu - The Internet and Higher Education, 2025 - Elsevier
In the era of proliferating artificial intelligence (AI) technology, generative AI is reshaping
educational landscapes, prompting a critical examination of its influence on students' …

Development of a factorial survey for use in an international study examining clinicians' likelihood to support the decision to initiate invasive long-term ventilation for a …

MB Quirke, D Alexander, K Masterson, J Greene… - BMC Medical Research …, 2022 - Springer
Background The decision to initiate invasive long-term ventilation for a child with complex
medical needs can be extremely challenging. TechChild is a research programme that aims …

Demographic and clinical differences between applied definitions of medical complexity

JA Heneghan, DM Goodman… - Hospital Pediatrics, 2022 - publications.aap.org
OBJECTIVES To identify the degree of concordance and characterize demographic and
clinical differences between commonly used definitions of multisystem medical complexity in …

The role of bioethics services in paediatric intensive care units: a qualitative descriptive study

D Alexander, M Quirke, J Greene, L Cassidy… - BMC Medical …, 2024 - Springer
Background There is considerable variation in the functionality of bioethical services in
different institutions and countries for children in hospital, despite new challenges due to …

Mothers' experiences of giving medicines to children with severe and profound intellectual disabilities—The impact on time

C Doyle - Child: Care, Health and Development, 2022 - Wiley Online Library
Background Chronic health conditions experienced by children with severe and profound
intellectual disabilities are accompanied by numerous challenges because of the prolonged …

Psychosocial outcomes in Chinese survivors of pediatric cancers or bone marrow failure disorders: A single-center study

J Cai, YT Cheung, PLW Au-Doung, W Hu, Y Gao… - Plos one, 2022 - journals.plos.org
Background/Objectives Most of the studies on functional outcomes in pediatric survivors of
cancers and bone marrow failure disorders have been conducted in North American …

Hospitalizations of children and adolescents with complex chronic conditions in Brazil: a temporal analysis from 2009 to 2020

PV Oliveira, BS Brocchi, CC Enes, LB Nucci - European Journal of …, 2023 - Springer
Access to advanced and sophisticated health technologies made it possible to increase the
survival of children with complex chronic conditions. Thus, the profile of pediatric patients …