[HTML][HTML] A systematic review in support of the national consensus project clinical practice guidelines for quality palliative care

SC Ahluwalia, C Chen, L Raaen, A Motala… - Journal of pain and …, 2018 - Elsevier
Context Palliative care continues to be a rapidly growing field aimed at improving quality of
life for patients and their caregivers. Objectives The purpose of this review was to provide a …

Pediatric palliative care in oncology

J Snaman, S McCarthy, L Wiener… - Journal of clinical oncology, 2020 - ascopubs.org
Pediatric palliative care aims to alleviate suffering and improve the quality of life of children
with serious disease and increase support for their parents and other family members …

The COVID‐19 pandemic: a rapid global response for children with cancer from SIOP, COG, SIOP‐E, SIOP‐PODC, IPSO, PROS, CCI, and St Jude Global

M Sullivan, E Bouffet… - Pediatric blood & …, 2020 - Wiley Online Library
The COVID‐19 pandemic is one of the most serious global challenges to delivering
affordable and equitable treatment to children with cancer we have witnessed in the last few …

Standards for the psychosocial care of children with cancer and their families: an introduction to the special issue

L Wiener, AE Kazak, RB Noll… - Pediatric blood & …, 2015 - Wiley Online Library
Pediatric oncology psychosocial professionals collaborated with an interdisciplinary group
of experts and stakeholders and developed evidence‐based standards for pediatric …

Patients' and parents' needs, attitudes, and perceptions about early palliative care integration in pediatric oncology

DR Levine, BN Mandrell, A Sykes, M Pritchard… - JAMA …, 2017 - jamanetwork.com
Importance Early palliative care integration for cancer patients is now touted as the optimal
care model, yet significant barriers often prevent its implementation. A perceived barrier …

Pediatric palliative care programs in US hospitals

MM Rogers, S Friebert, CSP Williams, L Humphrey… - …, 2021 - publications.aap.org
METHODS The National Palliative Care Registry collects annualized data on palliative care
programs' structures, processes, and staffing. Using data from the 2018 registry survey, we …

End-of-life communication needs for adolescents and young adults with cancer: recommendations for research and practice

UM Sansom-Daly, CE Wakefield… - Journal of Adolescent …, 2020 - liebertpub.com
A growing evidence base highlights the negative impact of poor psychosocial care at end-of-
life. Adolescents and young adults (AYAs) 15–39 years of age with cancer face unique …

Psychosocial interventions and therapeutic support as a standard of care in pediatric oncology

AC Steele, LL Mullins, AJ Mullins… - Pediatric blood & …, 2015 - Wiley Online Library
Research indicates that a subset of youths with childhood cancer and their parents will
experience significant psychological distress throughout the course of their illness …

Palliative care programs in children's hospitals

MS Weaver, VK Shostrom, EC Kaye, A Keegan… - …, 2022 - publications.aap.org
METHODS Analyses of the multicenter Children's Hospital Association Annual Benchmark
Report 2020 survey for prevalence of PPC programs and association with operational …

Delivery of care consistent with the psychosocial standards in pediatric cancer: Current practices in the United States

MA Scialla, KS Canter, FF Chen, EA Kolb… - Pediatric blood & …, 2018 - Wiley Online Library
Background With published evidence‐based Standards for Psychosocial Care for Children
with Cancer and their Families, it is important to know the current status of their …