Information needs of parents of children admitted to a neonatal intensive care unit: A review of the literature (1990–2008)

S De Rouck, M Leys - Patient education and counseling, 2009 - Elsevier
OBJECTIVE: This literature review focuses on information and communication needs of
parents of children admitted to the NICU and on their use of information sources in the …

European variation in decision-making and parental involvement during preterm birth

K Gallagher, J Martin, M Keller, N Marlow - Archives of Disease in …, 2014 - fn.bmj.com
Background Preterm birth is a major global public health issue due to its prevalence, impact
upon morbidity and mortality, and subsequent cost implications. Yet, policy analysis has not …

Antenatal counseling regarding resuscitation and intensive care before 25 weeks of gestation

J Cummings, Committee on Fetus and Newborn… - …, 2015 - publications.aap.org
The anticipated birth of an extremely low gestational age (< 25 weeks) infant presents many
difficult questions, and variations in practice continue to exist. Decisions regarding care of …

Values parents apply to decision-making regarding delivery room resuscitation for high-risk newborns

RD Boss, N Hutton, LJ Sulpar, AM West… - Pediatrics, 2008 - publications.aap.org
OBJECTIVE. The aim of this study was to characterize parental decision-making regarding
delivery room resuscitation for infants born extremely prematurely or with potentially lethal …

Deciding to resuscitate extremely premature babies: how do parents and neonatologists engage in the decision?

A Payot, S Gendron, F Lefebvre, H Doucet - Social science & medicine, 2007 - Elsevier
Parents at risk of delivering a baby at the threshold of viability are faced with a critical
decision. When a child is born between 23 and 25 weeks of gestation, parents are asked to …

Message framing and perinatal decisions

MF Haward, RO Murphy, JM Lorenz - Pediatrics, 2008 - publications.aap.org
OBJECTIVES. The purpose of this study was to explore the effect of information framing on
parental decisions about resuscitation of extremely premature infants. Secondary outcomes …

Neonatologist training to guide family decision making for critically ill infants

RD Boss, N Hutton, PK Donohue… - Archives of pediatrics & …, 2009 - jamanetwork.com
Objectives To assess neonatology fellow training in guiding family decision making for high-
risk newborns and in several critical communication skills for physicians in these scenarios …

International comparison of care for very low birth weight infants: parents' perceptions of counseling and decision-making

JC Partridge, AM Martinez, H Nishida, NY Boo… - …, 2005 - publications.aap.org
Objective. To characterize parent perceptions and satisfaction with physician counseling
and delivery-room resuscitation of very low birth weight infants in countries with neonatal …

Parental decision-making for medically complex infants and children: an integrated literature review

KA Allen - International Journal of Nursing Studies, 2014 - Elsevier
Background Many children with life-threatening conditions who would have died at birth are
now surviving months to years longer than previously expected. Understanding how parents …

Development of nationwide recommendations to support prenatal counseling in extreme prematurity

R Geurtzen, AFJ Van Heijst, JMT Draaisma… - …, 2019 - publications.aap.org
OBJECTIVES: To develop a nationwide, evidence-based framework to support prenatal
counseling in extreme prematurity, focusing on organization, decision-making, content, and …