Summary Background The Dermatology Life Quality Index (DLQI) is one of the most widely
used dermatologyspecific quality of life instruments. Over the last 5 years there has been …

The health-related quality of life (HR-QOL) of children and adolescents is increasingly
considered a relevant topic for research. Instruments to assess quality of life in children and …

This study explores the impact of living with Parkinson's disease (PD). Nineteen persons (11
women) aged 55–84 diagnosed with PD 3–27 years ago participated. Data were collected …

Developing new patientreported outcome measures (PROMs) for application in clinical
studies can be necessary if an adequate PROM does not exist. For adequate measurement …

Summary The Cardiff Acne Disability Index (CADI) is a questionnaire designed to measure
the quality of life of teenagers and young adults with acne. It has been used clinically and …

The 39-item Parkinson's Disease Questionnaire, and particularly its summary index (PDQ-
39SI) is a widely used patient-reported clinical trial endpoint. A basic assumption when …

Purpose Despite the significant impact of Crohn's disease (CD) on patients' physical and
emotional well-being, no CD-specific patient-reported outcome (PRO) measure is available …

STUDY QUESTION Which of the Endometriosis Health Profile-5 (EHP-5) and the EuroQol-
5D (EQ-5D) is the most efficient to assess quality of life in women suffering from …

Background Multimorbidity is both an individual and societal problem. For society, patients
with multimorbidity increase healthcare costs. For the individual, living with multimorbidity is …

Patient-reported outcome measures (PROMs) are assessments of health status from the
patient's perspective. The systematic and routine collection and use of PROMs in healthcare …