The Dermatology Life Quality Index 1994–2007: a comprehensive review of validation data and clinical results
MKA Basra, R Fenech, RM Gatt… - British Journal of …, 2008 - academic.oup.com
Summary Background The Dermatology Life Quality Index (DLQI) is one of the most widely
used dermatologyspecific quality of life instruments. Over the last 5 years there has been …
used dermatologyspecific quality of life instruments. Over the last 5 years there has been …
Generic health-related quality-of-life assessment in children and adolescents: methodological considerations
U Ravens-Sieberer, M Erhart, N Wille, R Wetzel… - …, 2006 - Springer
The health-related quality of life (HR-QOL) of children and adolescents is increasingly
considered a relevant topic for research. Instruments to assess quality of life in children and …
considered a relevant topic for research. Instruments to assess quality of life in children and …
The impact of living with Parkinson's disease: balancing within a web of needs and demands
C Sjödahl Hammarlund, A Westergren… - Parkinson's …, 2018 - Wiley Online Library
This study explores the impact of living with Parkinson's disease (PD). Nineteen persons (11
women) aged 55–84 diagnosed with PD 3–27 years ago participated. Data were collected …
women) aged 55–84 diagnosed with PD 3–27 years ago participated. Data were collected …
How to develop a conditionspecific PROM
JD Comins, J Brodersen, V Siersma… - … Journal of Medicine …, 2021 - Wiley Online Library
Developing new patientreported outcome measures (PROMs) for application in clinical
studies can be necessary if an adequate PROM does not exist. For adequate measurement …
studies can be necessary if an adequate PROM does not exist. For adequate measurement …
Clinical experience and psychometric properties of the Cardiff Acne Disability Index (CADI)
YT Abdelrazik, FM Ali, MS Salek… - British Journal of …, 2021 - academic.oup.com
Summary The Cardiff Acne Disability Index (CADI) is a questionnaire designed to measure
the quality of life of teenagers and young adults with acne. It has been used clinically and …
the quality of life of teenagers and young adults with acne. It has been used clinically and …
The 39-item Parkinson's Disease Questionnaire (PDQ-39): is it a unidimensional construct?
P Hagell, MH Nilsson - Therapeutic Advances in …, 2009 - journals.sagepub.com
The 39-item Parkinson's Disease Questionnaire, and particularly its summary index (PDQ-
39SI) is a widely used patient-reported clinical trial endpoint. A basic assumption when …
39SI) is a widely used patient-reported clinical trial endpoint. A basic assumption when …
Assessing quality of life in Crohn's disease: development and validation of the Crohn's Life Impact Questionnaire (CLIQ)
J Wilburn, SP McKenna, J Twiss, K Kemp… - Quality of Life …, 2015 - Springer
Purpose Despite the significant impact of Crohn's disease (CD) on patients' physical and
emotional well-being, no CD-specific patient-reported outcome (PRO) measure is available …
emotional well-being, no CD-specific patient-reported outcome (PRO) measure is available …
Measuring health-related quality of life in women with endometriosis: comparing the clinimetric properties of the Endometriosis Health Profile-5 (EHP-5) and the …
G Aubry, P Panel, G Thiollier, C Huchon… - Human …, 2017 - academic.oup.com
STUDY QUESTION Which of the Endometriosis Health Profile-5 (EHP-5) and the EuroQol-
5D (EQ-5D) is the most efficient to assess quality of life in women suffering from …
5D (EQ-5D) is the most efficient to assess quality of life in women suffering from …
Conceptualisation of a measurement framework for Needs-based Quality of Life among patients with multimorbidity
K Bissenbakker, A Møller, JB Brodersen… - Journal of Patient …, 2022 - Springer
Background Multimorbidity is both an individual and societal problem. For society, patients
with multimorbidity increase healthcare costs. For the individual, living with multimorbidity is …
with multimorbidity increase healthcare costs. For the individual, living with multimorbidity is …
[HTML][HTML] Choosing your partner for the PROM: a review of evidence on patient-reported outcome measures for use in primary and community care
Patient-reported outcome measures (PROMs) are assessments of health status from the
patient's perspective. The systematic and routine collection and use of PROMs in healthcare …
patient's perspective. The systematic and routine collection and use of PROMs in healthcare …