Perinatal palliative care birth planning as advance care planning

DME Cortezzo, K Ellis, A Schlegel - Frontiers in Pediatrics, 2020 - frontiersin.org
Purpose of Review: A significant number of pregnancies are complicated by a fetus with a
life-limiting diagnosis. As diagnoses are made earlier in the pregnancy, families experience …

[HTML][HTML] Perinatal bereavement and palliative care offered throughout the healthcare system

C Wool, A Catlin - Annals of palliative medicine, 2019 - apm.amegroups.org
The aims of this article are twofold:(I) provide a general overview of perinatal bereavement
services throughout the healthcare system and (II) identify future opportunities to improve …

[HTML][HTML] Survey on neonatal end-of-life comfort care guidelines across America

S Haug, S Farooqi, CG Wilson, A Hopper, G Oei… - Journal of Pain and …, 2018 - Elsevier
Context Infants of age less than one year have the highest mortality rate in pediatrics. The
American Academy of Pediatrics published guidelines for palliative care in 2013; however …

Conceptually redefining neonatal palliative care

VJ Kain, SD Chin - Advances in Neonatal Care, 2020 - journals.lww.com
Background: First defined in 2002 by Catlin and Carter, neonatal palliative care (NPC) is a
relatively new model of care in neonatal pediatrics, first appearing in the medical literature in …

The neonatal comfort care program: origin and growth over 10 years

C Wool, E Parravicini - Frontiers in Pediatrics, 2020 - frontiersin.org
The objective of perinatal palliative care is to provide holistic and comprehensive health
care services to women who are anticipating the birth of a neonate diagnosed prenatally …

Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope

DME Cortezzo, M Vawter-Lee, A Shoaib… - Frontiers in …, 2023 - frontiersin.org
Fetal neurology is a rapidly evolving and expanding field. Discussions about diagnosis,
prognosis, treatment options, and goals of care often begin in the antenatal period …

[HTML][HTML] Breaking bad news in a neonatal intensive care: the parent's evaluation

L Marçola, I Zoboli, RTV Polastrini… - Revista Paulista de …, 2020 - SciELO Brasil
Objective: To describe the reports of parents of newborns (NB) with congenital
malformations hospitalized in a Neonatal Intensive Care Unit (NICU) who received bad …

Considerations for practice in supporting parental bereavement in the neonatal intensive care unit—a systematic review

J Lakhani, C Mack, D Kunyk, J Kung… - Journal of Palliative …, 2023 - journals.sagepub.com
Background Parental bereavement after the death of an infant in a neonatal intensive care
unit (NICU) is a complex and nuanced experience. Support from healthcare practitioners …

Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years

S Bertaud, G Brightley, N Crowley, F Craig… - BMC Palliative Care, 2023 - Springer
Background Perinatal palliative care is an emerging branch of children's palliative care. This
study sought to better understand the pattern of antenatal referrals and the role of a …

My child's legacy: a mixed methods study of bereaved parents and providers' opinions about collaboration with NICU teams in quality improvement initiatives

CJ Bourque, S Dahan, G Mantha, M Reichherzer… - BMJ open, 2020 - bmjopen.bmj.com
Objective Although stakeholders' participation in healthcare is increasingly recommended,
bereaved parents are often excluded for perceived potential risks to them. The objective of …