Haemophilia patients experience acute pain during joint bleeds and chronic pain from
haemophilic arthropathy. More than 50% of haemophilia patients have painful joints that …

Quality of life (QoL) is a multidimensional construct pertaining to an individual's physical,
emotional, mental, social and behavioural components of well‐being and functioning. QoL …

Inhibitors in patients with hemophilia are a rare complication of a rare disease causing pain
and disability in patients and impairment to the quality of their lives. Recent advances in …

In spite of an increased interest in the assessment of quality of life (QoL) in children, so far
no instrument for children with haemophilia is available. Because of the low prevalence of …

Inhibitors represent one major complication of haemophilia treatment, as they increase the
risk of bleeding, physical disability and mortality. The Cost Of Care Inhibitors Study (COCIS) …

Summary Background: von Willebrand Disease (VWD) is the most frequent inherited
bleeding disorder. It is unknown how this disorder affects quality of life. Objectives: This …

A multicentre, international, cross‐sectional study was carried out in the frame of field testing
of the first haemophilia‐specific quality‐of‐life (QoL) questionnaire (Haemo‐QoL). The aim …

BACKGROUND Studies on health-related quality of life are based on the increasingly
evident need for medical care not to be limited to preventing death, but to focus instead on …

This study describes health‐related quality of life (HRQoL) of persons with haemophilia A in
the United States (US) and determines associations between self‐reported joint pain, motion …

Several measures of quality of life (QoL) are available for children with haemophilia.
However, most are not disease‐specific and few focus on children's perspectives. The …