Social support and social isolation in adults with cystic fibrosis: an integrative review

A Gulledge, S Miller, M Mueller - Journal of Psychosomatic Research, 2021 - Elsevier
Background Adults with cystic fibrosis have unique barriers that may decrease their ability to
receive adequate social support and socialization, leading to social isolation. Social …

Incorporating the patient perspective in the study of rare bone disease: insights from the osteogenesis imperfecta community

T Swezey, BB Reeve, TS Hart, MK Floor… - Osteoporosis …, 2019 - Springer
There is limited research which examines health concerns of individuals with osteogenesis
imperfecta (OI). Discussion groups with leaders of the adult OI community identified a broad …

[HTML][HTML] Correspondence between lung function and symptom measures from the Cystic Fibrosis Respiratory Symptom Diary–Chronic Respiratory Infection Symptom …

LS Gold, DL Patrick, RN Hansen, CH Goss… - Journal of Cystic …, 2019 - Elsevier
Abstract Background Pulmonary exacerbations (PEx) in cystic fibrosis (CF) patients reduce
quality of life. Lung function, measured by the percent predicted forced expiratory volume in …

Listening to motivational music while walking elicits more positive affective response in patients with cystic fibrosis

E Calik-Kutukcu, M Saglam, N Vardar-Yagli… - … therapies in clinical …, 2016 - Elsevier
Objective The purpose of this study was to investigate the effects of motivational and
relaxation music on affective responses during exercise in patients with cystic fibrosis (CF) …

Evaluating the contribution of the Glittre‐ADL test in adults with cystic fibrosis

VLB Abelenda, CH da Costa… - Physiotherapy …, 2024 - Wiley Online Library
Abstract Background and Objectives Cardiopulmonary and skeletal muscle impairment and
poor physical activity are potential contributors to reduced functional capacity in cystic …

Polish Cystic Fibrosis Patients' Health-Related Quality of Life and Its Influencing Factors: A Cross-Sectional, Single-Centre Study

M Humaj-Grysztar, M Rachel, J Bonior - Healthcare, 2024 - mdpi.com
Cystic fibrosis (CF) is a disease characterized by long-term and troublesome symptoms that
affect the patient's life. This study aimed to assess and compare the health-related quality of …

Six‐minute walk, lung clearance index, and QOL in bronchiolitis obliterans and cystic fibrosis

M Gur, K Masarweh, Y Toukan, V Nir… - Pediatric …, 2019 - Wiley Online Library
Introduction The 6‐min walk test (6MWT) predicts outcome in pulmonary hypertension.
Recently, its use was reported in both cystic fibrosis (CF) and bronchiolitis obliterans (BO) …

[HTML][HTML] Physical performance, quality of life and sexual satisfaction evaluation in adults with cystic fibrosis: an unexplored correlation

KCA Aguiar, FAL Marson, CCS Gomez… - Revista Portuguesa de …, 2017 - Elsevier
Objective Quality of life (QOL), sexual satisfaction (SS) and physical performance have been
assessed in the management of numerous chronic diseases. Methods In this study, the …

Adherence to Mediterranean diet is associated with lung function in older adults: data from the Health and Retirement Study

I Papassotiriou, SM Shariful Islam - Journal of the American …, 2021 - Taylor & Francis
Objective: The aim of this work was to examine the association between adherence to a
Mediterranean diet (MD) and lung function in older adults. Design: This was an …

Pediatric Glittre ADL-test in cystic fibrosis: physiological parameters and respiratory mechanics

AC Almeida, RMG Wamosy, NL Neto… - … Theory and Practice, 2021 - Taylor & Francis
Background: To evaluate the functional capacity in children and adolescents with cystic
fibrosis (CF) through the pediatric Glittre ADL-test (TGlittre-P) and its implications for …