Barriers to healthcare for persons with autism: A systematic review of the literature and development of a taxonomy
Purpose: This review aimed to 1) synthesize extant research on barriers to healthcare
access experienced by persons with autism, their caregivers, and health-care providers; and …
access experienced by persons with autism, their caregivers, and health-care providers; and …
Systematic review: United States workforce for autism-related child healthcare services
Objective A diversity of health professional disciplines provide services for children with
autism spectrum disorder (ASD) in the United States. We conducted a systematic review …
autism spectrum disorder (ASD) in the United States. We conducted a systematic review …
A qualitative study of health care providers' perceptions and experiences of working together to care for children with medical complexity (CMC)
L Altman, Y Zurynski, C Breen, T Hoffmann… - BMC health services …, 2018 - Springer
Background Children with medical complexity (CMC) have a wide range of long term health
problems and disabilities that have an adverse impact on their quality of life. They have high …
problems and disabilities that have an adverse impact on their quality of life. They have high …
The importance of subspecialty pediatricians to the health and well-being of the nation's children
AL Myers, JJ Fussell, ME Moffatt, D Boyer… - The Journal of …, 2023 - jpeds.com
Methods All ABP-certified pediatric subspecialties, along with other subspecialties providing
care for children that have representation within the Council of Pediatric Subspecialties …
care for children that have representation within the Council of Pediatric Subspecialties …
Well-child visits of Medicaid-insured children with medical complexity
I Shumskiy, T Richardson, S Brar, M Hall, J Cox… - The Journal of …, 2018 - Elsevier
Objective Well-child visits (WCVs) help optimize children's health. We measured annual
WCVs for children with medical complexity (CMC) and correlated WCVs with …
WCVs for children with medical complexity (CMC) and correlated WCVs with …
The pediatric home health care process: perspectives of prescribers, providers, and recipients
K Fratantoni, JC Raisanen, RD Boss, J Miller… - …, 2019 - publications.aap.org
METHODS: Semistructured interviews were conducted with parents and professionals from
the 10 US Health Resources and Services Administration regions. Parents were recruited …
the 10 US Health Resources and Services Administration regions. Parents were recruited …
Feasibility of implementing systematic social needs assessment for children with medical complexity
DY Ming, KA Jones, E Sainz, H Tkach… - Implementation Science …, 2021 - Springer
Background Children with medical complexity (CMC) have inter-related health and social
needs; however, interventions to identify and respond to social needs have not been …
needs; however, interventions to identify and respond to social needs have not been …
Evaluation of a case management to support families with children diagnosed with spinal muscular atrophy—protocol of a controlled mixed-methods study
J Willems, E Farin-Glattacker, T Langer - Frontiers in Pediatrics, 2021 - frontiersin.org
Background: Spinal muscular atrophy (SMA) is a rare neuromuscular disease characterized
by degeneration of the anterior horn cells in the spinal cord, resulting in muscle atrophy, and …
by degeneration of the anterior horn cells in the spinal cord, resulting in muscle atrophy, and …
Investigating a “wait and see” mindset among pediatric health care providers: missed opportunities to refer toddlers with autism spectrum disorder to part C early …
NM Edwards, E Kaiser, JL Stapel-Wax - Infants & Young Children, 2021 - journals.lww.com
Abstract In the United States, there is a widespread concern with not referring more infants
and toddlers with a risk of or identified autism spectrum disorder (ASD) to Early Intervention …
and toddlers with a risk of or identified autism spectrum disorder (ASD) to Early Intervention …
Implementation of a multidisciplinary discharge videoconference for children with medical complexity: a pilot study
NL Ravid, K Zamora, R Rehm, M Okumura… - Pilot and Feasibility …, 2020 - Springer
Background The hospital to home transition for children with medical complexity (CMC)
poses many challenges, including suboptimal communication between the hospital and …
poses many challenges, including suboptimal communication between the hospital and …