Understanding the value of brain donation for research to donors, next-of-kin and clinicians: A systematic review
CP Griffin, JR Bowen, MM Walker, J Lynam, CL Paul - Plos one, 2023 - journals.plos.org
Purpose Post-mortem brain donation affords the opportunity to characterise disease by
exploring global neuropathological changes. Such opportunities are essential to progress …
exploring global neuropathological changes. Such opportunities are essential to progress …
Facilitators, challenges, and messaging strategies for Hispanic/Latino populations participating in Alzheimer's disease and related dementias clinical research: a …
HA Massett, AK Mitchell, L Alley… - Journal of …, 2021 - content.iospress.com
Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD)
disproportionally affect Hispanic and Latino populations, yet Hispanics/Latinos are …
disproportionally affect Hispanic and Latino populations, yet Hispanics/Latinos are …
A call to address structural barriers to Hispanic/Latino representation in clinical trials on Alzheimer's disease and related dementias: A micro‐meso‐macro perspective
MP Aranda, DX Marquez… - … Research & Clinical …, 2023 - Wiley Online Library
Introduction This perspective paper addresses the US Hispanic/Latino (herein, Latino)
experience with regards to a significant public health concern—the underrepresentation of …
experience with regards to a significant public health concern—the underrepresentation of …
Increasing engagement of Hispanics/Latinos in clinical trials on Alzheimer's disease and related dementias
DX Marquez, A Perez, JK Johnson… - … Research & Clinical …, 2022 - Wiley Online Library
Abstract Introduction Despite evidence that Hispanic/Latino populations are 1.5 times more
likely than non‐Latino Whites to develop Alzheimer's disease and related dementias …
likely than non‐Latino Whites to develop Alzheimer's disease and related dementias …
Effects of sex, race, ethnicity, and education on online aging research participation
MT Ashford, J Eichenbaum, T Williams… - … Research & Clinical …, 2020 - Wiley Online Library
Introduction This study aimed to identify the relationship of sociodemographic variables with
older adults participation in an online registry for recruitment and longitudinal assessment in …
older adults participation in an online registry for recruitment and longitudinal assessment in …
Racial and ethnic differences in older adults' willingness to be contacted about Alzheimer's disease research participation
Introduction We sought to examine the association of race/ethnicity with willingness to
engage in studies that involve procedures typical of Alzheimer's disease (AD) clinical trials …
engage in studies that involve procedures typical of Alzheimer's disease (AD) clinical trials …
Screening and enrollment of underrepresented ethnocultural and educational populations in the Alzheimer's Disease Neuroimaging Initiative (ADNI)
MT Ashford, R Raman, G Miller… - Alzheimer's & …, 2022 - Wiley Online Library
Introduction An analysis of the ethnocultural and socioeconomic composition of Alzheimer's
Disease Neuroimaging Initiative (ADNI) participants is needed to assess the generalizability …
Disease Neuroimaging Initiative (ADNI) participants is needed to assess the generalizability …
Different cohort, disparate results: Selection bias is a key factor in autopsy cohorts
K Gauthreaux, WA Kukull, KB Nelson… - Alzheimer's & …, 2024 - Wiley Online Library
INTRODUCTION Research‐oriented autopsy cohorts provide critical insights into dementia
pathobiology. However, different studies sometimes report disparate findings, partially …
pathobiology. However, different studies sometimes report disparate findings, partially …
Representation of older Latinxs in cohort studies at the Rush Alzheimer's Disease Center
Abstract The Rush Alzheimer's Disease Center (RADC) conducts 5 harmonized prospective
clinical-pathologic cohort studies of aging–with 1 study, the Latino Core, focused exclusively …
clinical-pathologic cohort studies of aging–with 1 study, the Latino Core, focused exclusively …
Development and implementation of an electronic clinical dementia rating and financial capacity instrument‐short form
T Howell, S Gummadi, C Bui… - Alzheimer's & …, 2022 - Wiley Online Library
Introduction To address the need for remote assessments of cognitive decline and dementia,
we developed and administered electronic versions of the Clinical Dementia Rating (CDR®) …
we developed and administered electronic versions of the Clinical Dementia Rating (CDR®) …