The aim of this systematic review was to synthesize the literature regarding health-related
stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were …

This review had three aims: 1) describe the measures used to assess health-related quality
of life (HRQL) in pediatric patients diagnosed with sickle cell disease (SCD); 2) document …

Sickle cell disease (SCD) is a genetic disorder, characterized by hemolytic anemia and vaso‐
occlusive crises (VOCs). Data on the global SCD impact on quality of life (QoL) from the …

Body image (BI) can be described as the assessment of both positive and negative emotion
for one's own body parts and their characteristics by himself or herself. Current research has …

Efforts to introduce hydroxyurea effectively into low-resource countries should urgently
address the lack of treatment guidelines, gaps in knowledge and clinical infrastructure, and …

Psychosocial and affective comorbidities are common in sickle cell disease (SCD) and can
strongly influence disease outcomes, especially those related to pain such as frequency and …

Background: Sickle cell disease (SCD) complications lead to poor health-related quality of
life (HRQOL) and increased healthcare utilization in this population, which could be …

Sickle cell disease (SCD) is an inherited blood disorder that affects about 100,000 people in
the US, primarily Blacks/African-Americans. A multitude of complications negatively impacts …

Background Young people's experiences of healthcare as they move into adult services can
have a major impact on their health, and the transition period for young people with sickle …

Background Worldwide, the burden of Sickle Cell disease (SCD) has not been amply
addressed. In Africa, Uganda has the 5th highest burden, a situation aggravated by limited …