Adaptive interviewing for the inclusion of people with intellectual disability in qualitative research

B McFarland, L Bryant, S Wark… - Journal of Applied …, 2024 - Wiley Online Library
Background Historically the voices of people with intellectual disability have been occluded
by barriers imposed by research practice. More recently, adaptive research approaches …

Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies

I Belperio, R Walker, C Bigby, I Wiesel… - Journal of Intellectual …, 2024 - Taylor & Francis
Background: Future planning is a way of supporting people with intellectual disabilities and
their families to think about their support needs as both groups age. Adults with intellectual …

Inclusive research: Is the road more or less well travelled?

P O'Brien - Social Sciences, 2022 - mdpi.com
The purpose of this Special Issue on inclusive research is to capture international insights
into the following questions:“How far have we come?” and “Where do we need to go?” Such …

In pursuit of ethical and inclusive research: What ethics committees and disability researchers can learn from each other

M Walsh, V Stead, SM Sawyer… - International …, 2024 - journals.sagepub.com
Across disciplines, qualitative researchers have documented epistemological and practical
tensions in the ethical review of community-based and participatory research, with many …

Collaboration with researchers with intellectual/developmental disabilities: An illustration of inclusive research attributes across two projects

JM Kramer, EE Dean, MP Urquilla, JB Beasley… - …, 2024 - meridian.allenpress.com
Researchers have implemented inclusive research for over 30 years. This article describes
how two research projects collaborated with researchers with disabilities and aligns the …

Valuing experiential knowledge to complement professional and scientific knowledge within care and support for people with intellectual disabilities

PJCM Embregts, N Frielink - International Review of Research in …, 2023 - Elsevier
There is an increased emphasis on utilizing and sharing new knowledge within daily
practice, in order to optimize the quality of care and support for people with intellectual …

What makes life better or worse: Quality of life according to people with intellectual disabilities

HM Holmes, WB Mortenson - Journal of Applied Research in …, 2024 - Wiley Online Library
Background People with intellectual disabilities are rarely involved in research on quality of
life. The study sought to answer the question: what do people with intellectual disabilities …

The development of a co‐researcher training with and for people with intellectual and developmental disabilities

L van Heumen, C Krueger… - Journal of Applied …, 2024 - Wiley Online Library
Background To build capacity among people with intellectual and developmental disabilities
to become co‐researchers they need the opportunity to learn about research. Method An …

Research About Us, With Us: An Inclusive Research Case Study

AS Buck, R Chapman, GL Krahn… - Intellectual and …, 2024 - meridian.allenpress.com
Inclusive research combines the expertise of academically trained researchers with the lived
experience of individuals with disabilities to render results that are more accessible …

Self-Advocacy in Inclusive Research

C Krueger, L van Heumen, C van den Helder - Social Sciences, 2024 - mdpi.com
The literature on inclusive research has established its relationship with self-advocacy for
people with intellectual disabilities. Self-advocacy has been described as both a …