[HTML][HTML] Approach to record linkage of primary care data from Clinical Practice Research Datalink to other health-related patient data: overview and implications

S Padmanabhan, L Carty, E Cameron… - European journal of …, 2019 - Springer
Record linkage is increasingly used to expand the information available for public health
research. An understanding of record linkage methods and the relevant strengths and …

[HTML][HTML] Administrative data linkage in Brazil: potentials for health technology assessment

MS Ali, MY Ichihara, LC Lopes, GCG Barbosa… - Frontiers in …, 2019 - frontiersin.org
Health technology assessment (HTA) is the systematic evaluation of the properties and
impacts of health technologies and interventions. In this article, we presented a discussion of …

Challenges in administrative data linkage for research

K Harron, C Dibben, J Boyd, A Hjern… - Big data & …, 2017 - journals.sagepub.com
Linkage of population-based administrative data is a valuable tool for combining detailed
individual-level information from different sources for research. While not a substitute for …

Linking sensitive data

P Christen, T Ranbaduge, R Schnell - Methods and techniques for …, 2020 - Springer
Sensitive personal data are created in many application domains, and there is now an
increasing demand to share, integrate, and link such data within and across organisations in …

[HTML][HTML] Privacy-preserving data sharing infrastructures for medical research: systematization and comparison

FN Wirth, T Meurers, M Johns, F Prasser - BMC Medical Informatics and …, 2021 - Springer
Background Data sharing is considered a crucial part of modern medical research.
Unfortunately, despite its advantages, it often faces obstacles, especially data privacy …

A guide to evaluating linkage quality for the analysis of linked data

KL Harron, JC Doidge, HE Knight… - International journal …, 2017 - academic.oup.com
Linked datasets are an important resource for epidemiological and clinical studies, but
linkage error can lead to biased results. For data security reasons, linkage of personal …

[HTML][HTML] CIDACS-RL: a novel indexing search and scoring-based record linkage system for huge datasets with high accuracy and scalability

GCG Barbosa, MS Ali, B Araujo, S Reis, S Sena… - BMC medical informatics …, 2020 - Springer
Background Record linkage is the process of identifying and combining records about the
same individual from two or more different datasets. While there are many open source and …

[HTML][HTML] Biases arising from linked administrative data for epidemiological research: a conceptual framework from registration to analyses

RJ Shaw, KL Harron, JM Pescarini… - European journal of …, 2022 - Springer
Linked administrative data offer a rich source of information that can be harnessed to
describe patterns of disease, understand their causes and evaluate interventions. However …

Child sexual abuse and criminal offending: Gender-specific effects and the role of abuse characteristics and other adverse outcomes

N Papalia, JRP Ogloff, M Cutajar… - Child …, 2018 - journals.sagepub.com
This study sought to enhance knowledge of the link between child sexual abuse (CSA) and
long-term criminality by investigating gender-specific effects and the role of index sexual …

The emerging landscape of health research based on biobanks linked to electronic health records: Existing resources, statistical challenges, and potential …

LJ Beesley, M Salvatore, LG Fritsche… - Statistics in …, 2020 - Wiley Online Library
Biobanks linked to electronic health records provide rich resources for healthrelated
research. With improvements in administrative and informatics infrastructure, the availability …