Introduction Self-report is the gold standard for measuring children's health-related
outcomes. Design of such measures is complex and challenging. This review aims to …

It is now expected that most individuals with congenital heart disease will survive to
adulthood, including those with complex heart conditions. Maintaining lifelong medical care …

Risk and vulnerability encompass many dimensions of the transition from adolescence to
adulthood. Transition from pediatric, parent-supervised health care to more independent …

To develop standards and recommendations for transitional care for young people (YP) with
juvenile-onset rheumatic and musculoskeletal diseases (jRMD). The consensus process …

Background We aimed to assess the feasibility of using multiple technologies to recruit and
conduct cognitive interviews among young people across the United States to test items …

Purpose The successful transition of childhood cancer survivors from pediatric-to adult-
focused long-term follow-up care is crucial and can be a critical period. Knowledge of …

Background Transition from pediatric to adult health care is a vulnerable period for
adolescents and young adults. Challenges include paucity of validated measures to assess …

Objective evidence is limited for the value of transition programs for youth with chronic
illness moving from pediatric to adult care; however, such programs intuitively “make sense” …

Purpose Pediatric healthcare systems must support childhood cancer survivors to optimize
their transition to adult care. This study aimed to assess the state of healthcare transition …

Background Transition from pediatric to adult healthcare for adolescents with chronic health
conditions has emerged as a critical period influencing health outcomes. Suitable transition …