[HTML][HTML] A scoping review of guidelines for the use of race, ethnicity, and ancestry reveals widespread consensus but also points of ongoing disagreement
M Mauro, DS Allen, B Dauda, SJ Molina… - The American Journal of …, 2022 - cell.com
The use of population descriptors such as race, ethnicity, and ancestry in science, medicine,
and public health has a long, complicated, and at times dark history, particularly for genetics …
and public health has a long, complicated, and at times dark history, particularly for genetics …
From biocolonialism to emancipation: considerations on ethical and culturally respectful omics research with indigenous Australians
As part of a (bio) colonial project, the biological information of Indigenous Peoples has
historically been under scientific scrutiny, with very limited benefits for communities and …
historically been under scientific scrutiny, with very limited benefits for communities and …
Pharmacogenomic research in South Africa: lessons learned and future opportunities in the rainbow nation
South Africa, like many other developing countries, stands to benefit from novel diagnostics
and drugs developed by pharmacogenomics guidance due to high prevalence of disease …
and drugs developed by pharmacogenomics guidance due to high prevalence of disease …
Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel
SM Fullerton, SSJ Lee - BMC medical ethics, 2011 - Springer
Background Recent changes to regulatory guidance in the US and Europe have
complicated oversight of secondary research by rendering most uses of de-identified data …
complicated oversight of secondary research by rendering most uses of de-identified data …
The ethical challenges of diversifying genomic data: A qualitative evidence synthesis
F Hardcastle, K Lyle, R Horton, G Samuel… - Cambridge Prisms …, 2024 - cambridge.org
This article aims to explore the ethical issues arising from attempts to diversify genomic data
and include individuals from underserved groups in studies exploring the relationship …
and include individuals from underserved groups in studies exploring the relationship …
[PDF][PDF] Molecular anthropology in the genomic era
Molecular Anthropology is a relatively young field of research. In fact, less than 50 years
have passed since the symposium ''Classification and Human Evolution''(1962, Burg …
have passed since the symposium ''Classification and Human Evolution''(1962, Burg …
Reactions, beliefs and concerns associated with providing hair specimens for medical research among a South African sample: a qualitative approach
In order to optimize treatment outcome among antiretroviral therapy users, there is a strong
imperative to engage in continued monitoring and maintenance of therapeutic drug levels in …
imperative to engage in continued monitoring and maintenance of therapeutic drug levels in …
Ethical genetic research in Indigenous communities: challenges and successful approaches☆
RE McWhirter, D Mununggirritj, D Marika… - Trends in Molecular …, 2012 - cell.com
Indigenous populations, in common with all populations, stand to benefit from the potential
of genetic research to lead to improvements in diagnostic and therapeutic tools for a wide …
of genetic research to lead to improvements in diagnostic and therapeutic tools for a wide …
Ethical, legal and social issues in diversifying genomic data: literature review and synthesis
F Hardcastle, L Ballard, S Weller, K Lyle, R Horton… - 2022 - ora.ox.ac.uk
Advances in technology have resulted in the ability to sequence entire human genomes as a
routine, relatively inexpensive, investigation in healthcare. This offers many promises of …
routine, relatively inexpensive, investigation in healthcare. This offers many promises of …
Genomic stuff: Governing the (im) matter of life
G Pálsson, B Prainsack - International Journal of the Commons, 2011 - JSTOR
Emphasizing the context of what has often been referred to as “scarce natural resources”, in
particular forests, meadows, and fishing stocks, Elinor Ostrom's important works, including …
particular forests, meadows, and fishing stocks, Elinor Ostrom's important works, including …