[HTML][HTML] A scoping review of guidelines for the use of race, ethnicity, and ancestry reveals widespread consensus but also points of ongoing disagreement

M Mauro, DS Allen, B Dauda, SJ Molina… - The American Journal of …, 2022 - cell.com
The use of population descriptors such as race, ethnicity, and ancestry in science, medicine,
and public health has a long, complicated, and at times dark history, particularly for genetics …

From biocolonialism to emancipation: considerations on ethical and culturally respectful omics research with indigenous Australians

GH Soares, J Hedges, S Sethi, B Poirier… - Medicine, Health Care …, 2023 - Springer
As part of a (bio) colonial project, the biological information of Indigenous Peoples has
historically been under scientific scrutiny, with very limited benefits for communities and …

Pharmacogenomic research in South Africa: lessons learned and future opportunities in the rainbow nation

L Warnich, BI Drogemoller, MS Pepper… - Current …, 2011 - ingentaconnect.com
South Africa, like many other developing countries, stands to benefit from novel diagnostics
and drugs developed by pharmacogenomics guidance due to high prevalence of disease …

Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel

SM Fullerton, SSJ Lee - BMC medical ethics, 2011 - Springer
Background Recent changes to regulatory guidance in the US and Europe have
complicated oversight of secondary research by rendering most uses of de-identified data …

The ethical challenges of diversifying genomic data: A qualitative evidence synthesis

F Hardcastle, K Lyle, R Horton, G Samuel… - Cambridge Prisms …, 2024 - cambridge.org
This article aims to explore the ethical issues arising from attempts to diversify genomic data
and include individuals from underserved groups in studies exploring the relationship …

[PDF][PDF] Molecular anthropology in the genomic era

G Destro-Bisol, MA Jobling, J Rocha… - Journal of …, 2010 - isita-org.com
Molecular Anthropology is a relatively young field of research. In fact, less than 50 years
have passed since the symposium ''Classification and Human Evolution''(1962, Burg …

Reactions, beliefs and concerns associated with providing hair specimens for medical research among a South African sample: a qualitative approach

B Coetzee, A Kagee, M Tomlinson, L Warnich… - Future …, 2012 - Taylor & Francis
In order to optimize treatment outcome among antiretroviral therapy users, there is a strong
imperative to engage in continued monitoring and maintenance of therapeutic drug levels in …

Ethical genetic research in Indigenous communities: challenges and successful approaches☆

RE McWhirter, D Mununggirritj, D Marika… - Trends in Molecular …, 2012 - cell.com
Indigenous populations, in common with all populations, stand to benefit from the potential
of genetic research to lead to improvements in diagnostic and therapeutic tools for a wide …

Ethical, legal and social issues in diversifying genomic data: literature review and synthesis

F Hardcastle, L Ballard, S Weller, K Lyle, R Horton… - 2022 - ora.ox.ac.uk
Advances in technology have resulted in the ability to sequence entire human genomes as a
routine, relatively inexpensive, investigation in healthcare. This offers many promises of …

Genomic stuff: Governing the (im) matter of life

G Pálsson, B Prainsack - International Journal of the Commons, 2011 - JSTOR
Emphasizing the context of what has often been referred to as “scarce natural resources”, in
particular forests, meadows, and fishing stocks, Elinor Ostrom's important works, including …