Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies

M Sellars, O Chung, L Nolte, A Tong… - Palliative …, 2019 - journals.sagepub.com
Background: Advance care planning aims to ensure that care received during serious and
chronic illness is consistent with the person's values, preferences and goals. However, less …

Defining end of life in dementia: a systematic review

B Browne, N Kupeli, KJ Moore… - Palliative …, 2021 - journals.sagepub.com
Background: Dementia is a life-limiting condition that affects 50 million people globally.
Existing definitions of end of life do not account for the uncertain trajectory of dementia …

Family caregiver quality of life and the care provided to older people living with dementia: Qualitative analyses of caregiver interviews

AA Hazzan, J Dauenhauer, P Follansbee, JO Hazzan… - BMC geriatrics, 2022 - Springer
Background While studies have examined the quality of life (QoL) of family caregivers for
people living with dementia, it is not yet clear how these caregivers' quality of life affects their …

Family members' expressions of dignity in palliative care: a qualitative study

A Sandgren, L Axelsson… - … journal of caring …, 2021 - Wiley Online Library
Living and dying with dignity are fundamental values in palliative care, not only for the
patient but also for family members. Although dignity has been studied from the different …

Enteral tube feeding for people with severe dementia

N Davies, Y Barrado-Martin… - Cochrane Database …, 2021 - cochranelibrary.com
Background The balance of benefits and harms associated with enteral tube feeding for
people with severe dementia is not clear. An increasing number of guidelines highlight the …

A decision aid to support family carers of people living with dementia towards the end‐of‐life: coproduction process, outcome and reflections

N Davies, EL Sampson, E West, T DeSouza… - Health …, 2021 - Wiley Online Library
Background Family carers of people living with dementia often need support with making
decisions about care. Many find end‐of‐life care decisions particularly difficult. The aim of …

A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia

K Lamahewa, R Mathew, S Iliffe, J Wilcock… - Health …, 2018 - Wiley Online Library
Background Dementia is a progressive neurodegenerative condition characterized by
declining functional and cognitive abilities. The quality of end of life care for people with …

Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development

JT Van der Steen, N Lemos Dekker, MJHE Gijsberts… - BMC palliative …, 2017 - Springer
Background When entering the dying phase, the nature of physical, psychosocial and
spiritual care needs of people with dementia and their families may change. Our objective …

Developing an applied model for making decisions towards the end of life about care for someone with dementia

N Davies, T De Souza, G Rait, J Meehan… - PLoS One, 2021 - journals.plos.org
Background Many people with dementia reach the end-of-life without an advance care plan.
Many are not ready to have conversations about end-of-life, and decision-making is left to …

End of life care for people with dementia: The views of health professionals, social care service managers and frontline staff on key requirements for good practice

RP Lee, C Bamford, M Poole, E McLellan, C Exley… - PLoS …, 2017 - journals.plos.org
Background Evidence consistently shows that people with advanced dementia experience
suboptimal end of life care compared to those with cancer; with increased hospitalisation …