Beliefs about causes of autism and vaccine hesitancy among parents of children with autism spectrum disorder

RP Goin-Kochel, E Fombonne, SS Mire, CG Minard… - Vaccine, 2020 - Elsevier
Vaccine hesitancy may be more common among parents of children with autism spectrum
disorder (ASD). We examined factors associated with ASD-specific vaccine hesitancy …

Measuring parental stress, illness perceptions, coping and quality of life in families of children newly diagnosed with autism spectrum disorder

A Papadopoulos, V Siafaka, A Tsapara, D Tafiadis… - BJPsych Open, 2023 - cambridge.org
Background A variety of psychosocial factors have been shown to affect the quality of life of
families (FQoL). Aim This study aimed to assess the impact of mother's demographic …

Comparing fathers' and mothers' perspectives about their child's autism spectrum disorder

SC Grebe, SS Mire, H Kim… - Journal of Autism and …, 2022 - Springer
Mothers are often the primary parent participants in autism spectrum disorder (ASD)
research. As a result, little is known about fathers' perceptions regarding their children's ASD …

Exploring sociodemographic predictors of parents' perceptions about their children's autism and their families' adjustment

GJ Rosenbrock, SS Mire, HJ Kim… - Research in …, 2021 - Elsevier
Background Diagnostic and treatment disparities exist among sociodemographically diverse
families with autism spectrum disorder (ASD). These disparities may be partially explained …

Vaccine hesitancy and illness perceptions: comparing parents of children with autism spectrum disorder to other parent groups

LC Sahni, JA Boom, SS Mire, LN Berry… - Children's Health …, 2020 - Taylor & Francis
Fears persist despite compelling evidence refuting associations between vaccines and
autism spectrum disorder (ASD). We compared vaccine hesitancy (VH) and beliefs about …

The family adjustment measure: Identifying stress in parents of youth with autism

SL McKee, X Liu, DM Truong, AC Meinert… - Journal of Child and …, 2020 - Springer
Objectives Families caring for children and adolescents with autism spectrum disorder
(ASD) have a unique parenting experience and often report high stress. Resilience factors …

Vaccine hesitancy and attributions for autism among racially and ethnically diverse groups of parents of children with autism spectrum disorder: a pilot study

J Chang, R Kochel - Autism Research, 2020 - Wiley Online Library
Little is known about how racial/ethnic differences may influence attributions for autism
spectrum disorder (ASD) and subsequent vaccine hesitancy, the latter of which refers to a …

Understanding perceptions underlying the self-reported stress among parents of adolescents with autism spectrum disorder: Considerations for supporting families

NS Raff, SS Mire, L Frankel, SD McQuillin… - Research in Autism …, 2021 - Elsevier
Background Parents raising adolescents with autism spectrum disorder (ASD) often report
higher stress than other parents. The influence of parents' internal, or cognitive, experiences …

Quality of life, illness perceptions, and parental lived experiences in TANGO2-related metabolic encephalopathy and arrhythmias

CN Murali, SR Lalani, MS Azamian… - European Journal of …, 2022 - nature.com
TANGO2 disorder is a rare genetic disease with multi-system effects that causes episodic
crises. Quality of life and psychosocial effects of this rare disease have not previously been …

[HTML][HTML] A Prospective Study of the Family Quality of Life, Illness Perceptions, and Coping in Mothers of Children Newly Diagnosed with Autism Spectrum Disorder and …

A Papadopoulos, A Tsapara, A Gryparis… - European Journal of …, 2024 - mdpi.com
(1) Background: This study assesses the impact of mothers' illness perceptions about autism
spectrum disorder and their coping strategies on the family's quality of life during the initial …