[HTML][HTML] Improving serious illness communication: a qualitative study of clinical culture
J Paladino, JJ Sanders, EK Fromme, S Block… - BMC palliative …, 2023 - Springer
Objective Communication about patients' values, goals, and prognosis in serious illness
(serious illness communication) is a cornerstone of person-centered care yet difficult to …
(serious illness communication) is a cornerstone of person-centered care yet difficult to …
Systems for electronic documentation and sharing of advance care planning preferences: a scoping review
HS Çevik, C Muente, F Muehlensiepen… - Progress in Palliative …, 2024 - Taylor & Francis
Digital approaches to support advance care planning (ACP) documentation and sharing are
increasingly being used, with a lack of research to characterise their design, content, and …
increasingly being used, with a lack of research to characterise their design, content, and …
Development of a stakeholder driven serious illness communication program for advance care planning in children, adolescents, and young adults with serious illness
DD DeCourcey, L Partin, A Revette, R Bernacki… - The Journal of …, 2021 - Elsevier
Objectives To develop a generalizable advance care planning (ACP) intervention for
children, adolescents, and young adults with serious illness using a multistage, stakeholder …
children, adolescents, and young adults with serious illness using a multistage, stakeholder …
Early serious illness communication in hospitalized patients: a study of the implementation of the speaking about goals and expectations (SAGE) program
JR Lakin, CG Arnold, HZ Catzen, A Rangarajan… - Healthcare, 2021 - Elsevier
Background Early conversations about patients' goals and values in advancing serious
illness (serious illness conversations) can drive better healthcare. However, these …
illness (serious illness conversations) can drive better healthcare. However, these …
[HTML][HTML] A novel patient values tab for the electronic health record: a user-centered design approach
AV Desai, CL Michael, GJ Kuperman, G Jordan… - Journal of Medical …, 2021 - jmir.org
Background The COVID-19 pandemic has shined a harsh light on a critical deficiency in our
health care system: our inability to access important information about patients' values …
health care system: our inability to access important information about patients' values …
Forms or Free-Text?: Measuring Advance Care Planning Activity Using Electronic Health Records
SN Zupanc, JR Lakin, AE Volandes… - Journal of Pain and …, 2023 - Elsevier
Advance care planning discussions seek to guide future serious illness care. These
discussions may be recorded in the electronic health record by documentation in clinical …
discussions may be recorded in the electronic health record by documentation in clinical …
Needs and perspectives of cancer center stakeholders for access to patient values in the electronic health record
AV Desai, R Agarwal, AS Epstein… - JCO Oncology …, 2021 - ascopubs.org
PURPOSE: High-quality cancer care must incorporate patients' personal values in decision
making throughout illness. Unfortunately, patient values are neither consistently elicited nor …
making throughout illness. Unfortunately, patient values are neither consistently elicited nor …
A yet unrealized promise: structured advance care planning elements in the electronic health record
Background: Electronic health records (EHRs) may help enable reliable, rapid data
management for many uses, such as facilitating communication of advance care planning …
management for many uses, such as facilitating communication of advance care planning …
Clinician identified barriers and strategies for advance care planning in seriously ill pediatric patients
MR Basu, L Partin, A Revette, J Wolfe… - Journal of Pain and …, 2021 - Elsevier
Context Parents desire more opportunities for advance care planning (ACP), however, large-
scale adoption of ACP for seriously ill children remains unrealized. Little is known about …
scale adoption of ACP for seriously ill children remains unrealized. Little is known about …
Improving serious illness communication: testing the serious illness care program with trainees
A Zehm, E Scott, KG Schaefer, PL Nguyen… - Journal of Pain and …, 2022 - Elsevier
Background Early conversations about patients' goals and values improve care, but
clinicians struggle to conduct them. The systems-based Serious Illness Care Program …
clinicians struggle to conduct them. The systems-based Serious Illness Care Program …