Home-based specialized pediatric palliative care: a systematic review and meta-analysis
NM Hammer, PE Bidstrup, J Brok, M Devantier… - Journal of pain and …, 2023 - Elsevier
Context Although specialized pediatric palliative care (SPPC) teams increasingly provide
home-based care, the evidence of its impact has not yet been systematically evaluated …
home-based care, the evidence of its impact has not yet been systematically evaluated …
Research participation in palliative medicine—benefits and barriers for patients and families: rapid review and thematic synthesis
LE Chatland, C Harvey, K Kelly… - BMJ Supportive & …, 2023 - spcare.bmj.com
Background Research is essential for gathering evidence to inform best practice and clinical
decision making, for developing and testing new treatments and services in palliative and …
decision making, for developing and testing new treatments and services in palliative and …
[HTML][HTML] Challenges and priorities for pediatric palliative care research in the US and similar practice settings: report from a pediatric palliative care research network …
Context To dramatically advance the evidence base for pediatric palliative care (PPC)
interventions, practices, and programs in the US and similar practice settings, the field needs …
interventions, practices, and programs in the US and similar practice settings, the field needs …
[HTML][HTML] Design and administration of patient-centred outcome measures: the perspectives of children and young people with life-limiting or life-threatening conditions …
L Coombes, D Harðardóttir, D Braybrook… - The Patient-Patient …, 2023 - Springer
Background Self-reported health data from children with life-limiting conditions is rarely
collected. To improve acceptability and feasibility of child and family-centred outcome …
collected. To improve acceptability and feasibility of child and family-centred outcome …
Impact of pediatric primary palliative care education and mentoring in practice
D Lafond, K Perko, D Fisher… - Journal of Hospice & …, 2022 - journals.lww.com
Primary palliative care education and mentoring strengthens frontline clinicians' confidence
and competence in pediatric palliative care, and potentially mitigates their moral distress …
and competence in pediatric palliative care, and potentially mitigates their moral distress …
The experiences of parents of children in pediatric palliative care: A qualitative study
Purpose This study aims to better understand the experiences of mothers of children
receiving pediatric palliative care. Design and methods The qualitative phenomenological …
receiving pediatric palliative care. Design and methods The qualitative phenomenological …
[HTML][HTML] Engaging parents of children who died from cancer in research on the early grief experience
Context Bereaved parents provide an important perspective for improving care for patients
and families throughout the illness and after a child's death. However, involvement of …
and families throughout the illness and after a child's death. However, involvement of …
[HTML][HTML] Nontherapeutic research with imminently dying and recently deceased study populations: addressing practical and ethical challenges
Because of a paucity of high-quality evidence, the updated Canadian Death Determination
Guidelines featured in this month's Special Issue of the Journal include several …
Guidelines featured in this month's Special Issue of the Journal include several …
The 2023-2026 hospice and palliative nurses association research agenda
H Coats, K Doyon, MJ Isaacson, D Tay… - Journal of Hospice & …, 2023 - journals.lww.com
Abstract The Hospice and Palliative Nursing Association established the triannual research
agenda to (a) provide focus for researchers to conduct meaningful scientific and quality …
agenda to (a) provide focus for researchers to conduct meaningful scientific and quality …
Facebook recruitment for children with advanced cancer and their parents: lessons from a web-based pediatric palliative intervention study
E Cho, MJ Gilmer, DL Friedman… - Progress in palliative …, 2021 - Taylor & Francis
Participant recruitment for pediatric palliative intervention studies is a chronic challenge for
researchers. Digital recruitment strategies, or digital technology-assisted recruitment …
researchers. Digital recruitment strategies, or digital technology-assisted recruitment …