Home-based specialized pediatric palliative care: a systematic review and meta-analysis

NM Hammer, PE Bidstrup, J Brok, M Devantier… - Journal of pain and …, 2023 - Elsevier
Context Although specialized pediatric palliative care (SPPC) teams increasingly provide
home-based care, the evidence of its impact has not yet been systematically evaluated …

Research participation in palliative medicine—benefits and barriers for patients and families: rapid review and thematic synthesis

LE Chatland, C Harvey, K Kelly… - BMJ Supportive & …, 2023 - spcare.bmj.com
Background Research is essential for gathering evidence to inform best practice and clinical
decision making, for developing and testing new treatments and services in palliative and …

[HTML][HTML] Challenges and priorities for pediatric palliative care research in the US and similar practice settings: report from a pediatric palliative care research network …

C Feudtner, AR Rosenberg, RD Boss, L Wiener… - Journal of Pain and …, 2019 - Elsevier
Context To dramatically advance the evidence base for pediatric palliative care (PPC)
interventions, practices, and programs in the US and similar practice settings, the field needs …

[HTML][HTML] Design and administration of patient-centred outcome measures: the perspectives of children and young people with life-limiting or life-threatening conditions …

L Coombes, D Harðardóttir, D Braybrook… - The Patient-Patient …, 2023 - Springer
Background Self-reported health data from children with life-limiting conditions is rarely
collected. To improve acceptability and feasibility of child and family-centred outcome …

Impact of pediatric primary palliative care education and mentoring in practice

D Lafond, K Perko, D Fisher… - Journal of Hospice & …, 2022 - journals.lww.com
Primary palliative care education and mentoring strengthens frontline clinicians' confidence
and competence in pediatric palliative care, and potentially mitigates their moral distress …

The experiences of parents of children in pediatric palliative care: A qualitative study

A Karakul, D Kıratlı, EA Akgül, T Çelik - Journal of Pediatric Nursing, 2022 - Elsevier
Purpose This study aims to better understand the experiences of mothers of children
receiving pediatric palliative care. Design and methods The qualitative phenomenological …

[HTML][HTML] Engaging parents of children who died from cancer in research on the early grief experience

JM Snaman, G Helton, JN Baker, SE Morris… - Journal of Pain and …, 2021 - Elsevier
Context Bereaved parents provide an important perspective for improving care for patients
and families throughout the illness and after a child's death. However, involvement of …

[HTML][HTML] Nontherapeutic research with imminently dying and recently deceased study populations: addressing practical and ethical challenges

NB Murphy, C Weijer, S Lalgudi Ganesan… - Canadian Journal of …, 2023 - Springer
Because of a paucity of high-quality evidence, the updated Canadian Death Determination
Guidelines featured in this month's Special Issue of the Journal include several …

The 2023-2026 hospice and palliative nurses association research agenda

H Coats, K Doyon, MJ Isaacson, D Tay… - Journal of Hospice & …, 2023 - journals.lww.com
Abstract The Hospice and Palliative Nursing Association established the triannual research
agenda to (a) provide focus for researchers to conduct meaningful scientific and quality …

Facebook recruitment for children with advanced cancer and their parents: lessons from a web-based pediatric palliative intervention study

E Cho, MJ Gilmer, DL Friedman… - Progress in palliative …, 2021 - Taylor & Francis
Participant recruitment for pediatric palliative intervention studies is a chronic challenge for
researchers. Digital recruitment strategies, or digital technology-assisted recruitment …