Despite the plethora of empirical studies conducted to date, debate continues about whether
and to what extent results should be returned to participants of genomic research. We aimed …

Background There is ongoing and increasing interest in the commercialization of
biospecimen-derived products from Indigenous Peoples. Discourse on benefit-sharing …

Importance Research into the genetic and genomic (“genomics”) foundations of disease is
central to our understanding of disease prevention, early detection, diagnostic accuracy, and …

The history of research in American Indian/Alaska Native (AI/AN) communities has been
marked by unethical practices, resulting in mistrust and reluctance to participate in research …

We conducted in-depth, semi-structured interviews with LGBTQ+-identified individuals (n=
31) to explore the range of LGBTQ+ perspectives on genomic research using either sexual …

Background This paper describes the design, implementation, and process outcomes from
three public deliberations held in three tribal communities. Although increasingly used …

Introduction Indigenous Peoples are increasingly exerting governance and oversight over
genomic research with citizens of their nations, raising questions about how best to enforce …

Background Over the last decade, the return of results (ROR) in precision medicine research
(PMR) has become increasingly routine. Calls for individual rights to research results have …

Introduction Indigenous peoples and perspectives are under-represented within genomic
research. Qualitative methods can help redress this under-representation by informing the …

The Navajo Nation placed a moratorium on genetic research studies in 2002, in part due to
concerns about historical distrust, exploitation, limited expertise and resources, and the lack …