Reliability and minimal detectable change for respiratory muscle strength measures in individuals with multiple sclerosis

S Aguilar-Zafra, R Fabero-Garrido… - Journal of Neurologic …, 2024 - journals.lww.com
Background and Purpose: The test-retest reliability and minimal detectable changes (MDCs)
for respiratory muscle strength measures have not been determined in individuals with …

Higher diet quality is associated with short and long-term benefits on SF-6D health state utilities: a 5-year cohort study in an international sample of people with …

H Kirkland, J Campbell, J Reece, N Nag, Y Probst… - Quality of Life …, 2023 - Springer
Abstract Background/Purpose Health state utilities (HSU) are a subjective measure of an
individual's health-related quality of life (HRQoL), adjusted by societal or patient relative …

Assessing health state utilities for people with myalgic encephalomyelitis/chronic fatigue syndrome in Australia using the EQ-5D-5L, AQoL-8D and EQ-5D-5L …

NC Orji, IA Cox, LA Jason, G Chen, T Zhao… - Quality of Life …, 2024 - Springer
Purpose Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic
condition with a constellation of symptoms presenting as severe and profound fatigue of≥ 6 …

Protocol for a pragmatic randomised controlled feasibility study of MS WorkSmart: an online intervention for Australians with MS who are employed

I van der Mei, S Thomas, S Shapland, LL Laslett… - BMJ open, 2024 - bmjopen.bmj.com
Introduction Multiple sclerosis (MS) causes a wide variety of symptoms. Loss of income due
to sickness and early retirement comprise one-third of the total cost of MS in Australia. An …

[HTML][HTML] Estimation of Transition Probabilities from a Large Cohort (> 6000) of Australians Living with Multiple Sclerosis (MS) for Changing Disability Severity …

JA Campbell, GJ Henson, VF Ngwa, H Ahmad… - …, 2024 - Springer
Background Multiple sclerosis (MS) is a chronic autoimmune/neurodegenerative disease
associated with progressing disability affecting mostly women. We aim to estimate transition …

Health-Related Quality of Life in Romanian Patients with Dystonia: An Exploratory Study

OL Băjenaru, CR Nuță, L Băjenaru, A Balog… - Journal of Clinical …, 2024 - mdpi.com
Background/Objectives: Dystonia is a neurological movement disorder characterized by
involuntary muscle contractions that lead to abnormal movements and postures; it has a …

Parent-Reported Child and Parent Quality of Life during COVID-19 Testing at an Australian Paediatric Hospital Outpatient Clinic: A Cross-Sectional Study

NK Brusco, M Danchin, JJ Watts, C Jos, M Loughnan… - Healthcare, 2023 - mdpi.com
Globally, we have seen a drop in adult and child quality of life (QOL) during the COVID-19
pandemic. However, little is known about adult or child QOL during the height of the …

Exploring the Comparability Between EQ-5D and the EQ Health and Wellbeing in the General Australian Population

P Lee, L Engel, E Lubetkin, L Gao - Value in Health, 2024 - Elsevier
Abstract Objectives The EQ Health and Wellbeing (EQ-HWB) is a novel measure that
conceptually overlaps with the 5-level EQ-5D (EQ-5D-5L) while capturing broader …

Using qualitative free-text data to investigate the lived experience of the COVID-19 pandemic for a large cohort of Australians with different multiple sclerosis related …

JA Campbell, I van der Mei, BV Taylor… - Journal of Neurology …, 2023 - jnnp.bmj.com
Background No large-scale qualitative studies have investigated the lived experience of
people living with multiple sclerosis (PwMS) during the pandemic according to their …