Integrated care for children living with complex care needs: an evolutionary concept analysis

L Cassidy, MB Quirke, D Alexander, J Greene… - European Journal of …, 2023 - Springer
Children with complex care needs (CCNs) are in need of improved access to healthcare
services, communication, and support from healthcare professionals to ensure high-quality …

Care coordination programs for infants with complex conditions: a systematic review

AJ Vance, A Benjamin, J Hsu, JG Berry - Pediatrics, 2023 - publications.aap.org
Care Coordination Programs for Infants With Complex Conditions: A Systematic Review Page
1 Care Coordination Programs for Infants With Complex Conditions: A Systematic Review …

Children's complex health: maternal experiences of care and decision making

E Willis, R Godbold - Journal of Child Health Care, 2023 - journals.sagepub.com
An increasing number of children with complex life-limiting and life-threatening conditions
are being cared for at home by their parents. Negative impacts on maternal health are now …

Negotiating safety and responsibility in caregiving to children receiving hospital‐at‐home: A Norwegian study of parents and homecare nurses' experiences

L Aasen, AK Johannessen… - Health & Social Care …, 2022 - Wiley Online Library
Healthcare policies in Western countries increasingly emphasise the avoidance of
hospitalisation to reduce hospital admissions. Hospital‐at‐home for children is a treatment …

Leave no one behind: why WHO's regional office for Europe should prioritise children and adolescents in their program of work. A position statement from the …

D Jansen, M Brenner, K Illy, Ł Dembiński… - Frontiers in …, 2023 - frontiersin.org
Children and adolescents are no longer a priority in the most recent European Programme
of Work (EPW) 2020–2025 of the World Health Organization (WHO) Regional Office for …

Exploring fathers' experiences of caring for a child with complex care needs through ethnography and arts-based methodologies

RL Woodgate, M Gonzalez, JD Ripat, M Edwards… - BMC pediatrics, 2024 - Springer
Background Although the number of children living with complex care needs (CCN) is
increasing worldwide, there is limited data on the experience of fathers caring for children …

Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review

D Loura, AM Ferreira, J Romeiro, Z Charepe - BMC pediatrics, 2024 - Springer
Background The prevalence of complex chronic conditions (CCC), which cause serious
limitations and require specialized care, is increasing. The diagnosis of a CCC is a health …

Families with complex needs: an inside perspective from young people, their carers, and healthcare providers

M Radu, R Moldovan, A Băban - Journal of community genetics, 2022 - Springer
Complex health needs are demanding and often require additional medical, psychological
and social support. All those involved (eg, patients, carers, professionals) face a unique set …

Quality care close to home: Objectives and early outcomes of a second paediatric heart transplant service in Australia

S Basu, C Irving, P Roberts, Y Orr… - … of Paediatrics and …, 2023 - Wiley Online Library
Aim We describe the experience of a new paediatric heart transplant (HT) centre in
Australia. New South Wales offers quaternary paediatric cardiac services including …

Trajetória dos profissionais com crianças e adolescentes que possuem necessidades especiais de saúde

A da Silveira, LM dos Santos… - Revista Eletrônica …, 2023 - acervomais.com.br
Objetivo: Conhecer a trajetória dos profissionais que atuam na clínica e na escola da
Associação de Pais e Amigos dos Excepcionais e a construção de vínculo para o cuidado …