Supporting the health care transition from adolescence to adulthood in the medical home

PH White, WC Cooley, ADA Boudreau, M Cyr… - …, 2018 - publications.aap.org
Risk and vulnerability encompass many dimensions of the transition from adolescence to
adulthood. Transition from pediatric, parent-supervised health care to more independent …

[HTML][HTML] Long-term care of the pediatric kidney transplant recipient

HE Fernandez, BJ Foster - … Journal of the American Society of …, 2022 - journals.lww.com
Pediatric kidney transplant recipients are distinguished from adult recipients by the need for
many decades of graft function, the potential effect of CKD on neurodevelopment, and the …

Healthcare transition for adolescents and young adults with long‐term conditions: Qualitative study of patients, parents and healthcare professionals' experiences

I Coyne, A Sheehan, E Heery… - Journal of clinical …, 2019 - Wiley Online Library
Aim and objectives To examine the needs and perspectives regarding healthcare transition
for adolescents and young adults (AYAs) with the following long‐term conditions: diabetes …

Youths' experiences of transition from pediatric to adult care: an updated qualitative metasynthesis

M Varty, B Speller-Brown, L Phillips, KP Kelly - Journal of pediatric nursing, 2020 - Elsevier
Problem Improvements in chronic disease management has led to increasing numbers of
youth transitioning to adult healthcare. Poor transition can lead to high risks of morbidity and …

Measuring health care transition: Across time and into the future

N Cheak-Zamora, C Betz, T Mandy - Journal of pediatric nursing, 2022 - Elsevier
Problem Youth with special health care needs often experience significant difficulty
transitioning into adult health care services and adult life. Services supporting youths' …

[HTML][HTML] Health care transition for adolescent and young adults with intellectual disability: views from the parents

MS Franklin, LN Beyer, SM Brotkin, GR Maslow… - Journal of Pediatric …, 2019 - Elsevier
Purpose This study explored the health care transition (HCT) experiences of parents of
adolescents and young adults (AYAs) with intellectual disability (ID), 18–33 years of age …

The role of grit in health care management skills and health-related quality of life in college students with chronic medical conditions

KA Traino, DM Bakula, CM Sharkey, CM Roberts… - Journal of Pediatric …, 2019 - Elsevier
Purpose Adolescents and young adults (AYAs) with chronic medical conditions are at risk for
reduced health-related quality of life (HRQoL). Recent research on AYAs without chronic …

[HTML][HTML] Empowering young persons with congenital heart disease: Using intervention mapping to develop a transition program-the STEPSTONES project

MA Mora, M Saarijärvi, C Sparud-Lundin… - Journal of Pediatric …, 2020 - Elsevier
Purpose Describe the implementation of intervention mapping in the development of a
transition program that aims to empower adolescents with congenital heart disease. Design …

Pediatric nurses' role in health care transition planning: National survey findings and practice implications

JA Disabato, JE Mannino, CL Betz - Journal of Pediatric Nursing, 2019 - Elsevier
Purpose Youth and young adults (YYA) with chronic illness and/or disability (CID) face
numerous challenges in transition from pediatric to adult health care. Established evidence …

The transition to adult health care in youth with spina bifida: theory, measurement, and interventions

GN Holmbeck, TK Kritikos, A Stern… - Journal of Nursing …, 2021 - Wiley Online Library
Purpose This article focuses on the transition to adult health care in youth with spina bifida
(SB) from the perspective of theory, measurement, and interventions. Methods The purpose …