Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review

J Nicholas Dionne-Odom, SA Hooker, D Bekelman… - Heart failure …, 2017 - Springer
Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid
support from a family member or friend. Although HF and palliative care practice guidelines …

'Who cares?'The experiences of caregivers of adults living with heart failure, chronic obstructive pulmonary disease and coronary artery disease: a mixed methods …

MC Noonan, J Wingham, RS Taylor - BMJ open, 2018 - bmjopen.bmj.com
Objective To assess the experiences of unpaid caregivers providing care to people with
heart failure (HF) or chronic obstructive pulmonary disease (COPD) or coronary artery …

The impact of heart failure on patients and caregivers: A qualitative study

CA McHorney, SG Mansukhani, M Anatchkova… - PLoS …, 2021 - journals.plos.org
Background Heart failure is rising in prevalence but relatively little is known about the
experiences and journey of patients and their caregivers. The goal of this paper is to present …

Family caregiver support of patient self-management during chronic, life-limiting illness: a qualitative metasynthesis

D Schulman-Green, SL Feder… - Journal of family …, 2021 - journals.sagepub.com
Family caregivers play an integral role in supporting patient self-management, yet how they
perform this role is unclear. We conducted a qualitative metasynthesis of family caregivers' …

Optimising self-care support for people with heart failure and their caregivers: development of the Rehabilitation Enablement in Chronic Heart Failure (REACH-HF) …

CJ Greaves, J Wingham, C Deighan, P Doherty… - Pilot and feasibility …, 2016 - Springer
Background We aimed to establish the support needs of people with heart failure and their
caregivers and develop an intervention to improve their health-related quality of life …

'The importance of planning for the future': burden and unmet needs of caregivers' in advanced heart failure: a mixed methods study

S McIlfatrick, LC Doherty, M Murphy… - Palliative …, 2018 - journals.sagepub.com
Background: While studies have evaluated caregiver outcomes in heart failure, the burden
and support needs when caring for someone with advanced heart failure at the end of life …

Caregiver outcomes of the REACH-HF multicentre randomized controlled trial of home-based rehabilitation for heart failure with reduced ejection fraction

J Wingham, J Frost, N Britten, C Greaves… - European Journal of …, 2019 - academic.oup.com
Background Caregivers frequently provide support to people living with long-term
conditions. However, there is paucity of evidence of interventions that support caregivers in …

Caring experiences of family caregivers of patients with heart failure: a meta-ethnographic review of the past 10 years

EY Kim, S Oh, YJ Son - European Journal of Cardiovascular …, 2020 - academic.oup.com
Background: Living with heart failure, a debilitating disease with an unpredictable course,
requires ongoing adaptation and management not only from patients but also from their …

Behind the smile: qualitative study of caregivers' anguish and management responses while caring for someone living with heart failure

J Wingham, J Frost, N Britten - BMJ open, 2017 - bmjopen.bmj.com
Background Caregivers support self-management in heart failure but often experience
stress, anxiety and ill health as a result of providing care. Aims 1. To identify the factors that …

Positive experiences and self-gain among family caregivers of persons with heart failure

LR Bangerter, JM Griffin, SM Dunlay - The Gerontologist, 2019 - academic.oup.com
Background The majority of aging adults with heart failure (HF) receive support from a family
caregiver. Most literature has emphasized the stressors and burden of caregiving, with less …