Towards a universal model of family centered care: a scoping review

KM Kokorelias, MAM Gignac, G Naglie… - BMC health services …, 2019 - Springer
Background Families play an important role meeting the care needs of individuals who
require assistance due to illness and/or disability. Yet, without adequate support their own …

Recommendations for the establishment of stroke systems of care: a 2019 update: a policy statement from the American Stroke Association

O Adeoye, KV Nyström, DR Yavagal, J Luciano… - Stroke, 2019 - Am Heart Assoc
In 2005, the American Stroke Association published recommendations for the establishment
of stroke systems of care and in 2013 expanded on them with a statement on interactions …

Qualitative study of the psychological experience of COVID-19 patients during hospitalization

N Sun, L Wei, H Wang, X Wang, M Gao, X Hu… - Journal of affective …, 2021 - Elsevier
Abstract Background Coronavirus disease 2019 (COVID-19) continues to spread across the
globe, but patient experiences are rarely documented. Objective To explore the psychology …

Improving long-term outcomes after discharge from intensive care unit: report from a stakeholders' conference

DM Needham, J Davidson, H Cohen… - Critical care …, 2012 - journals.lww.com
Background: Millions of patients are discharged from intensive care units annually. These
intensive care survivors and their families frequently report a wide range of impairments in …

One-year outcomes in caregivers of critically ill patients

JI Cameron, LM Chu, A Matte… - … England Journal of …, 2016 - Mass Medical Soc
Background Few resources are available to support caregivers of patients who have
survived critical illness; consequently, the caregivers' own health may suffer. We studied …

Assessment scales for disorders of consciousness: evidence-based recommendations for clinical practice and research

RT Seel, M Sherer, J Whyte, DI Katz, JT Giacino… - Archives of physical …, 2010 - Elsevier
Report of the American Congress of Rehabilitation Medicine, Brain Injury-Interdisciplinary
Special Interest Group, Disorders of Consciousness Task Force: Seel RT, Task Force Chair …

The crisis of stroke: experiences of patients and their family caregivers

BJ Lutz, M Ellen Young, KJ Cox, C Martz… - Topics in stroke …, 2011 - Taylor & Francis
Abstract Purpose: Approximately 4.8 million stroke survivors are living in the community with
some level of disability requiring the assistance of family caregivers. Stroke family caregivers …

Enablers and barriers in hospital‐to‐home transitional care for stroke survivors and caregivers: A systematic review

L Chen, LD Xiao, D Chamberlain… - Journal of Clinical …, 2021 - Wiley Online Library
Aims and objectives To synthesise qualitative research evidence on the experience of stroke
survivors and informal caregivers in hospital‐to‐home transitional care. Background Due to …

Stroke family caregivers' support needs change across the care continuum: a qualitative study using the timing it right framework

JI Cameron, G Naglie, FL Silver… - Disability and …, 2013 - Taylor & Francis
Purpose: Family caregivers provide essential support as stroke survivors' return to
community living, but it is not standard clinical practice to prepare or provide ongoing …

Educational needs of patients with a stroke and their caregivers: a systematic review of the literature

TB Hafsteinsdóttir, M Vergunst, E Lindeman… - Patient education and …, 2011 - Elsevier
OBJECTIVE: To systematically review the research on stroke patients' and caregivers'
educational needs. METHODS: A search of the literature prior to and including the year …