[HTML][HTML] A profile of the SAIL databank on the UK secure research platform
KH Jones, DV Ford, S Thompson… - International journal of …, 2019 - ncbi.nlm.nih.gov
Background The Secure Anonymised Information Linkage (SAIL) Databank is a national
data safe haven of de identified datasets principally about the population of Wales, made …
data safe haven of de identified datasets principally about the population of Wales, made …
Should free-text data in electronic medical records be shared for research? A citizens' jury study in the UK
Background Use of routinely collected patient data for research and service planning is an
explicit policy of the UK National Health Service and UK government. Much clinical …
explicit policy of the UK National Health Service and UK government. Much clinical …
[HTML][HTML] Thirty-three myths and misconceptions about population data: from data capture and processing to linkage
P Christen, R Schnell - International Journal of Population Data …, 2023 - ncbi.nlm.nih.gov
Databases covering all individuals of a population are increasingly used for research and
decision-making. The massive size of such databases is often mistaken as a guarantee for …
decision-making. The massive size of such databases is often mistaken as a guarantee for …
Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond
The last 6 years have seen sustained investment in health data science in the United
Kingdom and beyond, which should result in a data science community that is inclusive of all …
Kingdom and beyond, which should result in a data science community that is inclusive of all …
[HTML][HTML] Unlocking the potential of electronic health records for health research
Electronic health records (EHRs), originally designed to facilitate health care delivery, are
becoming a valuable data source for health research. EHR systems have two components …
becoming a valuable data source for health research. EHR systems have two components …
[HTML][HTML] Population data science: advancing the safe use of population data for public benefit
KH Jones, DV Ford - Epidemiology and health, 2018 - ncbi.nlm.nih.gov
The value of using population data to answer important questions for individual and societal
benefit has never been greater. Governments and research funders world-wide are …
benefit has never been greater. Governments and research funders world-wide are …
Who benefits and how? Public expectations of public benefits from data-intensive health research
The digitization of society and academic research endeavours have led to an explosion of
interest in the potential uses of population data in research. Alongside this, increasing …
interest in the potential uses of population data in research. Alongside this, increasing …
Disambiguating the benefits and risks from public health data in the digital economy
S Cheung - Big Data & Society, 2020 - journals.sagepub.com
This article focuses on key roles that the ill-defined concept of 'public benefit'plays in
accessing the public health data held by the UK's National Health Service. Using the …
accessing the public health data held by the UK's National Health Service. Using the …
Ciência de dados populacionais
CM Coeli - Epidemiologia e Serviços de Saúde, 2022 - SciELO Brasil
A rápida evolução das tecnologias de informação proporciona um crescimento sem
precedentes da capacidade de produção, armazenamento, troca, processamento e análise …
precedentes da capacidade de produção, armazenamento, troca, processamento e análise …
[HTML][HTML] Protocol for evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE): A data linkage healthcare …
NE Andrew, J Kim, DA Cadilhac… - … Journal of Population …, 2019 - ncbi.nlm.nih.gov
Aim To outline the methodological approach for our study that is designed to evaluate the
effectiveness (including cost) of primary care policies for chronic diseases in Australia using …
effectiveness (including cost) of primary care policies for chronic diseases in Australia using …