[HTML][HTML] A profile of the SAIL databank on the UK secure research platform

KH Jones, DV Ford, S Thompson… - International journal of …, 2019 - ncbi.nlm.nih.gov
Background The Secure Anonymised Information Linkage (SAIL) Databank is a national
data safe haven of de identified datasets principally about the population of Wales, made …

Should free-text data in electronic medical records be shared for research? A citizens' jury study in the UK

E Ford, M Oswald, L Hassan, K Bozentko… - Journal of medical …, 2020 - jme.bmj.com
Background Use of routinely collected patient data for research and service planning is an
explicit policy of the UK National Health Service and UK government. Much clinical …

[HTML][HTML] Thirty-three myths and misconceptions about population data: from data capture and processing to linkage

P Christen, R Schnell - International Journal of Population Data …, 2023 - ncbi.nlm.nih.gov
Databases covering all individuals of a population are increasingly used for research and
decision-making. The massive size of such databases is often mistaken as a guarantee for …

Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond

E Ford, A Boyd, JKF Bowles, A Havard… - Learning health …, 2019 - Wiley Online Library
The last 6 years have seen sustained investment in health data science in the United
Kingdom and beyond, which should result in a data science community that is inclusive of all …

[HTML][HTML] Unlocking the potential of electronic health records for health research

S Lee, Y Xu, AG D'Souza, EA Martin… - … Journal of Population …, 2020 - ncbi.nlm.nih.gov
Electronic health records (EHRs), originally designed to facilitate health care delivery, are
becoming a valuable data source for health research. EHR systems have two components …

[HTML][HTML] Population data science: advancing the safe use of population data for public benefit

KH Jones, DV Ford - Epidemiology and health, 2018 - ncbi.nlm.nih.gov
The value of using population data to answer important questions for individual and societal
benefit has never been greater. Governments and research funders world-wide are …

Who benefits and how? Public expectations of public benefits from data-intensive health research

M Aitken, C Porteous, E Creamer… - Big Data & …, 2018 - journals.sagepub.com
The digitization of society and academic research endeavours have led to an explosion of
interest in the potential uses of population data in research. Alongside this, increasing …

Disambiguating the benefits and risks from public health data in the digital economy

S Cheung - Big Data & Society, 2020 - journals.sagepub.com
This article focuses on key roles that the ill-defined concept of 'public benefit'plays in
accessing the public health data held by the UK's National Health Service. Using the …

Ciência de dados populacionais

CM Coeli - Epidemiologia e Serviços de Saúde, 2022 - SciELO Brasil
A rápida evolução das tecnologias de informação proporciona um crescimento sem
precedentes da capacidade de produção, armazenamento, troca, processamento e análise …

[HTML][HTML] Protocol for evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE): A data linkage healthcare …

NE Andrew, J Kim, DA Cadilhac… - … Journal of Population …, 2019 - ncbi.nlm.nih.gov
Aim To outline the methodological approach for our study that is designed to evaluate the
effectiveness (including cost) of primary care policies for chronic diseases in Australia using …