Voices not heard: A systematic review of adolescents' and emerging adults' perspectives of health care transition

CL Betz, ML Lobo, WM Nehring, K Bui - Nursing Outlook, 2013 - Elsevier
Background A better understanding of the needs of adolescents and emerging adults with
special health care needs (AEA-SHCNs) is essential to provide health care transition …

Transitions from child to adult health care for young people with intellectual disabilities: a systematic review

M Brown, J Macarthur, A Higgins… - Journal of advanced …, 2019 - Wiley Online Library
Aims To examine the experiences of health transitions for young people with intellectual
disabilities and their carers and identify the implications for nursing practice. Design A …

Transition to adulthood for young people with medical complexity: an integrative literature review

E Joly - Journal of Pediatric Nursing, 2015 - Elsevier
Highlights•Empirical literature on transition for medically complex young people is
explored.•A lack of support and difficulty accessing appropriate services was evident.• …

Improving health care transitions for children and youth with special health care needs

MJ Okumura, DZ Kuo, AN Ware, MH Cyr, PH White - Academic pediatrics, 2022 - Elsevier
Health care transitions (HCT) from pediatric to adult health care remain a challenge for
children and youth with special health care needs (CYSHCN), their families and their …

Transition from child to adult health services: a qualitative study of the views and experiences of families of young adults with intellectual disabilities

M Brown, A Higgins, J MacArthur - Journal of Clinical Nursing, 2020 - Wiley Online Library
Aims and objectives To explore the experiences of the families of young adults with
intellectual disabilities at the point of transition from child to adult health services …

Movin'on up: an innovative nurse-led interdisciplinary health care transition program

CL Betz, KA Smith, A Van Speybroeck… - Journal of Pediatric …, 2016 - Elsevier
This article provides an overview of an innovative nurse-led interdisciplinary health care
transition (HCT) model of care entitled Movin'On Up for adolescents and emerging adults …

Self-management and transition to adult health care in adolescents and young adults: a team process

JD Mahan, CL Betz, MJ Okumura… - Pediatrics in …, 2017 - publications.aap.org
As health care continues to evolve, the need for more effective health care transition (HCT)
for all youth, but particularly children with chronic conditions and special health care needs …

Uncharted territory: systematic review of providers' roles, understanding, and views pertaining to health care transition

WM Nehring, CL Betz, ML Lobo - Journal of Pediatric Nursing, 2015 - Elsevier
Background Health care transition (HCT) for adolescents and emerging adults (AEA) with
special health care needs is an emerging field of interdisciplinary field of practice and …

Pediatric nurses' role in health care transition planning: National survey findings and practice implications

JA Disabato, JE Mannino, CL Betz - Journal of Pediatric Nursing, 2019 - Elsevier
Purpose Youth and young adults (YYA) with chronic illness and/or disability (CID) face
numerous challenges in transition from pediatric to adult health care. Established evidence …

Experiences with and outcomes of two interventions to maximize engagement of chronically ill adolescents during hospital consultations: a mixed methods study

AL van Staa, JNT Sattoe, MMH Strating - Journal of pediatric nursing, 2015 - Elsevier
Highlights•Patient-provider communication is critical to improve transition-related
outcomes.•Transition readiness support should focus on adolescents' autonomy and life …