[HTML][HTML] The impact of implicit and explicit bias about disabilities on parent experiences and information provided during prenatal screening and testing
S Meredith, S Weiss, HL Kleinert, CA Tyrrell - Disability and Health Journal, 2024 - Elsevier
Background Prenatal screening technology has consistently raised concerns regarding the
conversations and information provided about disabilities, particularly given that research …
conversations and information provided about disabilities, particularly given that research …
Making use of non-invasive prenatal testing (NIPT): rethinking issues of routinization and pressure
B Schöne-Seifert, C Junker - Journal of Perinatal Medicine, 2021 - degruyter.com
First mapping the main ethical issues surrounding prenatal testing, we then analyze which
concerns are specific to non-invasive methods. Presupposing the privatization premise for …
concerns are specific to non-invasive methods. Presupposing the privatization premise for …
The limitations of liberal reproductive autonomy
JY Lee - Medicine, Health Care and Philosophy, 2022 - Springer
The common liberal understanding of reproductive autonomy–characterized by free choice
and a principle of non-interference–serves as a useful way to analyse the normative appeal …
and a principle of non-interference–serves as a useful way to analyse the normative appeal …
Narrative equity in genomic screening at the population level
R Garland-Thomson, SA Larson - The American Journal of …, 2023 - Taylor & Francis
Dive et al. argue to limit the scope, scale, and quantity of results in genomic screening
programs at the population level. Their analysis offers two interrelated reasons for this …
programs at the population level. Their analysis offers two interrelated reasons for this …
[HTML][HTML] Finding out the “gender” sooner: Ethical tensions and parental motivation in discovering fetal sex and chromosomal anomaly risk using noninvasive prenatal …
A Owen, GA Ratliff - SSM-Qualitative Research in Health, 2024 - Elsevier
Noninvasive prenatal testing (NIPT) has rapidly expanded in both utilization and scope
since it became available in 2011. While NIPT screens for a limited number of chromosomal …
since it became available in 2011. While NIPT screens for a limited number of chromosomal …
Eugenics and genetic screening in television medical dramas
A Eilmus, J Clayton - Medical Humanities, 2024 - mh.bmj.com
Medical dramas offer unique insights into the way popular media makes sense of genetic
technology and the ethics of its applications. In this paper we evaluate the contrasting …
technology and the ethics of its applications. In this paper we evaluate the contrasting …
The salience of genomic information to reproductive autonomy: Australian healthcare professionals' views on a changing prenatal testing landscape
K Drysdale, JL Scully, L Kint, KJ Laginha… - New Genetics and …, 2024 - Taylor & Francis
Genomic testing in prenatal care is rapidly advancing and it is now possible to obtain an
entire fetal genome via a blood test administered in early pregnancy. In the pursuit of …
entire fetal genome via a blood test administered in early pregnancy. In the pursuit of …
[HTML][HTML] Improving Trauma & Disability Bias in Prenatal Screening
S Meredith, S Weiss - 2023 - helenjournal.org
When my son was born with Down syndrome in 2000, I was 23 years old and had just
started my first job out of college. The delivery was difficult, and he was whisked away to the …
started my first job out of college. The delivery was difficult, and he was whisked away to the …
Chasing a runaway train: disability policy grapples with accelerated prenatal genetic technologies
KB Ayers, MC Schneider - Research Handbook on Disability Policy, 2023 - elgaronline.com
Noninvasive prenatal testing (NIPT1) is a maternal blood test utilized to screen for different
genetic disabilities and other characteristics of the fetus, like sex. NIPT analyzes circulating …
genetic disabilities and other characteristics of the fetus, like sex. NIPT analyzes circulating …
A Comprehensive Policy Analysis to Address the Public Health Dilemma of Systemic Ableism and Patient Distress Following Prenatal Screening for Disabilities
S Meredith - 2024 - scholarworks.gsu.edu
Background: For nearly twenty years, research studies have demonstrated that the majority
of pregnant patients do not receive the information and support they need when learning …
of pregnant patients do not receive the information and support they need when learning …