Multiple sclerosis caregiving: a systematic scoping review to map current state of knowledge

R Rajachandrakumar… - Health & Social Care in the …, 2022 - Wiley Online Library
Unpaid caregivers, typically family and friends, provide significant amounts of support to
people with multiple sclerosis (MS). Understanding their experiences, needs and challenges …

An integrative review of occupational science and theoretical literature exploring transition

C Crider, CR Calder, KL Bunting… - Journal of Occupational …, 2015 - Taylor & Francis
An occupational perspective of the experience of transition has been developed in the peer
reviewed occupational science literature. While that literature describes the elements of …

Co‐occupation: Extending the dialogue

ND Pickens, K Pizur‐Barnekow - Journal of Occupational Science, 2009 - Taylor & Francis
Co‐occupation is a concept not thoroughly studied or understood. A new definition of co‐
occupation is proposed which postulates that the nature of engagement in co‐occupation …

Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research

G Topcu, H Buchanan, A Aubeeluck… - Psychology & Health, 2016 - Taylor & Francis
Objective: The lack of adequate conceptualisation and operationalisation of quality of life
(QoL) limits the ability to have a consistent body of evidence to improve QoL research and …

Advanced multiple sclerosis and the psychosocial impact on families

C Bowen, A MacLehose, JG Beaumont - Psychology and Health, 2011 - Taylor & Francis
This study explores family relationships and support needs when adapting to a relative's
advanced-multiple sclerosis (MS) around transition into care. A multi-site qualitative study of …

The needs of carers of people with multiple sclerosis: a literature review

M Corry, A While - Scandinavian journal of caring sciences, 2009 - Wiley Online Library
People with multiple sclerosis depend heavily upon their families and other informal carers
as they receive limited support from health‐care professionals or health‐care services …

[HTML][HTML] Self-help acceptance and commitment therapy for carers of people with multiple sclerosis: A feasibility randomised controlled trial

KJ Potter, N Golijana-Moghaddam… - Journal of clinical …, 2021 - Springer
Abstract Acceptance and Commitment Therapy (ACT) is an established psychological
therapy, but its effectiveness for carers of people with multiple sclerosis (MS) experiencing …

Our disease: a qualitative meta‐synthesis of the experiences of spousal/partner caregivers of people with multiple sclerosis

D Appleton, N Robertson, L Mitchell… - … Journal of Caring …, 2018 - Wiley Online Library
Purpose To provide a unique and conceptually comprehensive account of the lived
experiences of caregiving spouses/partners of people with multiple sclerosis, which can be …

Occupational adaptation in people with multiple sclerosis

EM Lexell, S Iwarsson, ML Lund - … , Participation and Health, 2011 - journals.sagepub.com
The aim of this study was to gain an enhanced understanding of how people with multiple
sclerosis experience their occupational adaptation. Ten people with multiple sclerosis were …

Occupational science research describing occupation

D Pierce - Occupational science for occupational therapy, 2024 - taylorfrancis.com
When occupational science began, the focus was on developing an understanding of
occupation (Clark et al., 1991). That is, we initially targeted Level 1 factor-identifying …