[HTML][HTML] Social Prescribing Outcomes for Trials (SPOT): Protocol for a modified Delphi study on core outcomes

E Esfandiari, AM Chudyk, S Grover, EY Lau… - Plos one, 2023 - journals.plos.org
Purpose This is a study protocol to co-create with knowledge users a core outcome set
focused on middle-aged and older adults (40 years+) for use in social prescribing research …

Partnering with patients and caregivers to enrich research and care in kidney disease: values and strategies

R Cazzolli, A Sluiter, C Guha, B Huuskes… - Clinical Kidney …, 2023 - academic.oup.com
Patient and caregiver involvement broadens the scope of new knowledge generated from
research and can enhance the relevance, quality and impact of research on clinical practice …

Patient engagement in health implementation research: A logic model

M Bisson, K Aubrey‐Bassler, MC Chouinard… - Health …, 2023 - Wiley Online Library
Introduction Growing evidence supports patient engagement (PE) in health implementation
research to improve the quality, relevance and uptake of research. However, more guidance …

[HTML][HTML] Effects of a shared decision making intervention for older adults with multiple chronic conditions: the DICO study

RE Pel-Littel, BM Buurman, MH van de Pol… - BMC medical informatics …, 2023 - Springer
Background To evaluate the effects of a shared decision making (SDM) intervention for older
adults with multiple chronic conditions (MCCs). Methods A pragmatic trial evaluated the …

[HTML][HTML] Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers

AM Chudyk, R Stoddard, TA Duhamel… - Health Research Policy …, 2024 - Springer
Background Patient engagement in research (also commonly referred to as patient or
patient and public involvement in research) strives to transform health research wherein …

Codéveloppement d'un programme d'autogestion de la douleur chronique en ligne: un projet de recherche basé sur la conception et axé sur l'engagement des …

P Marier-Deschenes, AM Pinard… - Canadian Journal of …, 2024 - Taylor & Francis
Introduction L'autogestion est une approche privilégiée pour gérer la douleur chronique.
Jusqu'à tout récemment, aucun programme d'autogestion en français, en ligne et …

Improving Diverse and Equitable Involvement of Patients and Caregivers in Research in CKD: Report of a Better Evidence and Translation–Chronic Kidney Disease …

R Cazzolli, A Sluiter, S Bateman, H Candler… - American Journal of …, 2024 - Elsevier
Patient and caregiver involvement can enhance the uptake and impact of research,
however, the involvement of patients and caregivers who are underserved and marginalized …

[HTML][HTML] Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical …

AM Chudyk, S Kullman, D Pool, TA Duhamel… - Research Involvement …, 2024 - Springer
Background Participatory research approaches systematically integrate the perspectives of
individuals, organizations, or communities that have a direct interest in a study's processes …

[HTML][HTML] Multistakeholder recommendations for supporting patients and families transitioning from paediatric to adult congenital heart disease Care

EK Hyde, ASH Schultz, R Ducas, R Soni… - CJC Pediatric and …, 2023 - Elsevier
Background Transitioning from paediatric to adult congenital heart disease (CHD) care is a
high-risk time for being lost to follow-up. Existing CHD transition programmes have not …

[HTML][HTML] Research Buddy partnership in a MD–PhD program: lessons learned

DJ Gould, M Glanville-Hearst, S Bunzli… - Research Involvement …, 2023 - Springer
Background and aims There is increasing recognition of the importance of patient
involvement in research. In recent years, there has also been growing interest in patient …