Specialist paediatric palliative care services: what are the benefits?

S Mitchell, A Morris, K Bennett, L Sajid… - Archives of disease in …, 2017 - adc.bmj.com
Background The number of children and young people (CYP) living with life-limiting and life-
threatening conditions is rising. Paediatric palliative care is a relatively new aspect of …

Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: a realist review

S Mitchell, K Bennett, A Morris… - Palliative …, 2020 - journals.sagepub.com
Background: Palliative care for children and young people is a growing global health
concern with significant resource implications. Improved understanding of how palliative …

Exploring the perceived met and unmet need of life-limited children, young people and families

J Coad, J Kaur, N Ashley, C Owens, A Hunt… - Journal of Pediatric …, 2015 - Elsevier
This article presents an original study commissioned by the UK charity, Together for Short
Lives which explored children and young people up to 25 years of age with life …

Music therapy in the hospital-at-home: A practice for children in palliative care

TL Steinhardt, S Mortvedt… - British Journal of Music …, 2021 - journals.sagepub.com
This pilot research study investigated music therapy in a hospital-at-home setting for
children in palliative care, focusing on parental and nurses experiences of music therapy …

Impact of palliative care on end-of-life care and place of death in children, adolescents, and young adults with life-limiting conditions: A systematic review

SC Lin, MC Huang, D Yasmara… - Palliative & Supportive …, 2021 - cambridge.org
ObjectiveTo determine the impact of palliative care (PC) on end-of-life (EoL) care and the
place of death (PoD) in children, adolescents, and young adults with life-limiting conditions …

Facilitators and barriers to the delivery of palliative care to children with life-limiting and life-threatening conditions: a qualitative study of the experiences and …

S Mitchell, AM Slowther, J Coad, S Bertaud… - Archives of Disease in …, 2022 - adc.bmj.com
Objective To understand healthcare system facilitators and barriers to the delivery of
palliative care for children with life-limiting and life-threatening conditions and their family …

The needs of siblings of children with a life-threatening illness, part 1: conceptualization and development of a measure

M Olivier-D'Avignon, S Dumont, P Valois… - Palliative & Supportive …, 2017 - cambridge.org
Objective: The presence of a child afflicted with a life-threatening illness is a difficult situation
for the child's siblings, especially when their own needs are left unmet. The present article …

Sexuality, relationships and reproductive choices in young adults with life-limiting and/or life-threatening conditions

MC Blackburn - 2019 - oro.open.ac.uk
This thesis details an empirical exploration of how young adults with life-limiting and/or life-
threatening conditions talk about sexuality, intimacy, relationships and reproductive choices; …

Play in children with life-threatening and life-limiting conditions: A scoping review

ZA Jasem, AS Darlington, D Lambrick… - … American Journal of …, 2020 - research.aota.org
Importance: Play is essential to children and provides opportunities to promote their health
and well-being. Children living with life-threatening and life-limiting conditions experience …

The social and physical environmental factors associated with the play of children living with life threatening/limiting conditions: A Q methodology study

ZA Jasem, D Lambrick, DC Randall… - Child: Care, Health …, 2022 - Wiley Online Library
Background Living with a life threatening/limiting condition changes and challenges
children's play. The environment is known to support participation in play, yet there is a lack …