A glimpse into the future of systemic lupus erythematosus

M Aringer, ME Alarcón-Riquelme… - Therapeutic …, 2022 - journals.sagepub.com
This viewpoint article on a forecast of clinically meaningful changes in the management of
systemic lupus erythematosus (SLE) in the next 10 years is based on a review of the current …

Patient-reported outcomes for quality of life in SLE: essential in clinical trials and ready for routine care

MH Nguyen, FF Huang, SG O'Neill - Journal of clinical medicine, 2021 - mdpi.com
Patient-reported outcome (PRO) instruments are widely used to assess quality of life in
Systemic Lupus Erythematosus (SLE) research, and there is growing evidence for their use …

Assessment and personalised advice for fatigue in systemic lupus erythematosus using an innovative digital tool: the Lupus Expert system for the Assessment of …

L Kawka, JC Sarmiento-Monroy, P Mertz… - RMD open, 2023 - rmdopen.bmj.com
Background Fatigue is reported as the most prevalent symptom by patients with systemic
lupus erythematosus (SLE). Fatigue management is complex due to its multifactorial nature …

Severe flares are associated with a poorer health-related quality of life (HRQoL) in patients with SLE: data from the Almenara Lupus Cohort

MF Ugarte-Gil, RV Gamboa-Cardenas… - Lupus Science & …, 2022 - lupus.bmj.com
Background Flares in patients with SLE, regardless of their severity, have been associated
with damage accrual. However, their impact on health-related quality of life (HRQoL) has not …

What Does It Mean to Be a British Isles Lupus Assessment Group–Based Composite Lupus Assessment Responder? Post Hoc Analysis of Two Phase III Trials

R Furie, EF Morand, IN Bruce, D Isenberg… - Arthritis & …, 2021 - Wiley Online Library
Objective The British Isles Lupus Assessment Group–based Composite Lupus Assessment
(BICLA) is a validated global measure of treatment response in systemic lupus …

Determinants of patient and physician global assessments of disease activity in anti-neutrophil cytoplasmic antibody-associated vasculitis

M Rohde, A Kernder, H Acar, C Düsing… - Frontiers in …, 2023 - frontiersin.org
Objective To compare physician and patient assessments of global disease activity in anti-
neutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) and to identify …

Using PROMIS-29 to determine symptom burdens in the context of the Type 1 and 2 systemic lupus erythematosus (SLE) model: a cross sectional study

K Sun, AM Eudy, N Harris, DS Pisetsky… - Journal of Patient …, 2023 - Springer
Objective To account for heterogeneity in systemic lupus erythematosus (SLE) and bridge
discrepancies between patient-and physician-perceived SLE activity, we developed the …

Evaluation of the LFA-REAL clinician-reported outcome (ClinRO) and patient-reported outcome (PRO): prespecified analysis of the phase III ustekinumab trial in …

AD Askanase, W Tang, Q Zuraw, R Gordon… - Lupus Science & …, 2023 - lupus.bmj.com
Objective The Lupus Foundation of America Rapid Evaluation of Activity in Lupus (LFA-
REAL) system is a novel and simple SLE disease activity instrument, consisting of a tandem …

Perspectives of Rheumatologists on the Type 1 and 2 Systemic Lupus Erythematosus Model

AM Eudy, MEB Clowse, A Corneli… - ACR Open …, 2024 - Wiley Online Library
Objective The Type 1 and 2 systemic lupus erythematosus (SLE) Model was developed to
encapsulate all signs and symptoms that patients with SLE experience. Our previous …

Associations between TCA cycle plasma metabolites and fatigue in black females with systemic lupus erythematosus: An untargeted metabolomics pilot study

LP Kimble, A Khosroshahi, GS Brewster, SB Dunbar… - Lupus, 2024 - journals.sagepub.com
Objective In this pilot study, we used untargeted metabolomics to identify biochemical
mechanisms or biomarkers potentially underlying SLE-related fatigue. Methods Metabolon …