An estimated 14 million of the world's children are blind. A blind child is more likely to live in
socioeconomic deprivation, to be more frequently hospitalised during childhood and to die …

Most children with glaucoma will require surgery in their lifetime, often in their childhood
years. The surgical management of childhood glaucoma is however challenging, largely …

The aim of this paper was to describe the meaning of wellbeing for children and youth with
disabilities from their perspective. Twenty children and young people with a range of …

Background The involvement of young people with a chronic condition in research and
implementation projects in health and social care receives growing attention. Yet, there is a …

Objective To determine the validity and reliability of a novel questionnaire to measure vision‐
related quality of life (VRQOL) in children ages 8–18 years for use in juvenile idiopathic …

Background Although the significant impact of visual disability in childhood has been widely
recognized, children's own perspectives of living with a visual impairment have not been …

Purpose To report piloting and initial validation of the VQoL_CYP, a novel age-appropriate
vision-related quality of life (VQoL) instrument for self-reporting by children with visual …

Aim To identify patient-reported outcome measures (PROMs) specifically developed and
used to assess the impact of ophthalmic disorders in children and to systematically assess …

Objective To develop a novel age-appropriate measure of functional vision (FV) for self-
reporting by visually impaired (VI) children and young people. Design Questionnaire …

Objective As part of a larger qualitative study to explore outcomes important in paediatric
chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) and what improvements in …