Patient involvement in clinical trial design can facilitate the recruitment and retention of
participants as well as potentially increase the uptake of the tested intervention and the …

Objective To describe patient perspectives on recruitment and retention in clinical trials.
Study Design and Setting Systematic review of qualitative studies that reported the …

Introduction Digital health, the use of apps, text-messaging, and online interventions, can
revolutionize healthcare and make care more equitable. Currently, digital health …

Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD)
disproportionally affect Hispanic and Latino populations, yet Hispanics/Latinos are …

Background Dissemination of research findings to past study participants and the community‐
at‐large is important. Yet, a standardized process for research dissemination is needed to …

Objective Summaries of health research can be a complementary way to return value to
participants. We assess how research participants engage with summaries via email …

Ethical human subjects research requires participants to be treated safely and respectfully,
yet much bioethical debate takes place without participants. We aim to address this gap in …

Background Sharing trial results with participants is an ethical imperative but often does not
happen. We tested an Enhanced Webpage versus a Basic Webpage, Mailed Printed …

Background Slow recruitment and poor retention jeopardize the reliability and statistical
power of clinical trials, delaying access to effective interventions and increasing costs, as …

Background There is an ethical imperative to offer the results of trials to those who
participated. Existing research highlights that less than a third of trials do so, despite the …