The perspectives of children and young people affected by parental life-limiting illness: an integrative review and thematic synthesis
S Marshall, R Fearnley, K Bristowe… - Palliative …, 2021 - journals.sagepub.com
Background: Although the death of a parent during childhood is relatively commonplace, the
voices of children affected by parental life-limiting illness are under-represented in research …
voices of children affected by parental life-limiting illness are under-represented in research …
Twenty years of emotional-behavioral problems of community adolescents living in Italy measured through the Achenbach system of empirically based assessment …
CS Pace, S Muzi, A Frigerio, W Morganti… - Frontiers in …, 2023 - frontiersin.org
Background This is a systematic review and meta-analysis of emotional and behavioral
problems among Italian community adolescents in the last 20 years, as assessed through …
problems among Italian community adolescents in the last 20 years, as assessed through …
An online intervention for carers to manage behavioral symptoms in motor neuron disease (MiNDToolkit): a randomized parallel multi-center feasibility trial
E Mioshi, K Grant, E Flanagan, S Heal… - … Lateral Sclerosis and …, 2024 - Taylor & Francis
Background Evidence on management of behavioral symptoms in motor neuron disease
(MND) is lacking. The MiNDToolkit, an online psychoeducational platform, supports carers …
(MND) is lacking. The MiNDToolkit, an online psychoeducational platform, supports carers …
Eudaimonic well-being of Italian young adults during the covid-19 pandemic: Predictive and mediating roles of fear of death and psychological inflexibility
The literature has widely acknowledged the impact of the COVID-19 pandemic on the
mental health of young adults. Despite extensive research, eudaimonic well-being, which …
mental health of young adults. Despite extensive research, eudaimonic well-being, which …
Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesis
M Harris, G Thomas, M Thomas, P Cafarella… - … & supportive care, 2018 - cambridge.org
Objective: Disease management in motor neurone disease (MND) is focused on preserving
quality of life. However, the emphasis has so far been on physical symptoms and functioning …
quality of life. However, the emphasis has so far been on physical symptoms and functioning …
Amyotrophic lateral sclerosis (ALS) impact on minors' life: A qualitative study with children of ALS patients in Italy
Abstract Amyotrophic Lateral Sclerosis (ALS) is a rare progressive neurodegenerative
disease that is currently not curable and complex to manage. This qualitative study aimed to …
disease that is currently not curable and complex to manage. This qualitative study aimed to …
Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs
M Sommers-Spijkerman, N Rave… - BMC psychology, 2022 - Springer
Background Amyotrophic lateral sclerosis (ALS), progressive muscular atrophy (PMA) and
primary lateral sclerosis (PLS), together referred to as ALS, are life-limiting diagnoses …
primary lateral sclerosis (PLS), together referred to as ALS, are life-limiting diagnoses …
The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic
Children that have a parent with Amyotrophic Lateral Sclerosis (ALS) suffer from the
progressive loss of their beloved ones. During the COVID-19 pandemic, the difficulties faced …
progressive loss of their beloved ones. During the COVID-19 pandemic, the difficulties faced …
Strengths and weaknesses of children witnessing relatives with amyotrophic lateral sclerosis
Research on minors who have a close family member with amyotrophic lateral sclerosis
(ALS) is scarce. This study aims to analyze the relationships between reflective function and …
(ALS) is scarce. This study aims to analyze the relationships between reflective function and …
“Imagine you have ALS”: death education to prepare for advance treatment directives
The study presents the results of qualitative research carried out within a death education
project dedicated to advance treatment directives (ATDs) in which it was proposed to …
project dedicated to advance treatment directives (ATDs) in which it was proposed to …