Systematic and meta-analytic review: medication adherence among pediatric patients with sickle cell disease

K Loiselle, JL Lee, L Szulczewski… - Journal of Pediatric …, 2016 - academic.oup.com
Objective To provide a comprehensive summary (systematic review) of medication
adherence rates by assessment method and medication type for pediatric patients with …

Technology access and smartphone app preferences for medication adherence in adolescents and young adults with sickle cell disease

SM Badawy, AA Thompson… - Pediatric Blood & Cancer, 2016 - Wiley Online Library
Background Hydroxyurea is the only Food and Drug Administration approved medication for
sickle cell disease (SCD) with short‐and long‐term benefits for both morbidity and mortality …

Development and evaluation of iManage: a self‐management app co‐designed by adolescents with sickle cell disease

LE Crosby, RE Ware, A Goldstein… - Pediatric blood & …, 2017 - Wiley Online Library
Background Adolescents and young adults (AYAs) with sickle cell disease (SCD) are a
vulnerable population with high risk of morbidity that could be decreased with effective self …

Self‐management interventions for children and young people with sickle cell disease: A systematic review

BA Poku, KM Atkin, S Kirk - Health Expectations, 2023 - Wiley Online Library
Background Increasing numbers of interventions are being developed to support self‐
management for children and young people (CYP) with sickle cell disease (SCD), but no …

[HTML][HTML] Development of the InCharge health mobile app to improve adherence to hydroxyurea in patients with sickle cell disease: user-centered design approach

NM Alberts, SM Badawy, J Hodges… - JMIR mHealth and …, 2020 - mhealth.jmir.org
Background Sickle cell disease (SCD) is an inherited blood disorder causing acute
complications and chronic progressive end organ damage. SCD is associated with …

Perspectives of individuals with sickle cell disease on barriers to care

S Phillips, Y Chen, R Masese, L Noisette, K Jordan… - PloS one, 2022 - journals.plos.org
Introduction Sickle cell disease (SCD) is an inherited hemoglobinopathy that predominantly
affects African Americans in the United States. The disease is associated with complications …

Mobile health intervention for youth with sickle cell disease: Impact on adherence, disease knowledge, and quality of life

LM Anderson, S Leonard, J Jonassaint… - Pediatric blood & …, 2018 - Wiley Online Library
Background Adherence to illness self‐management among youth with sickle cell disease
(SCD) positively impacts health outcomes and decreases overall healthcare costs. Despite …

Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study

JR Hodges, SM Phillips, S Norell, C Nwosu… - Blood …, 2020 - ashpublications.org
Hydroxyurea is an efficacious treatment for sickle cell disease (SCD), but adoption is low
among individuals with SCD. The objective of this study was to examine barriers to patients' …

Transition from pediatric to adult care in sickle cell disease: perspectives on the family role

JS Porter, JC Graff, AD Lopez, JS Hankins - Journal of pediatric nursing, 2014 - Elsevier
Transition from pediatric to adult care poses challenges for adolescents with sickle cell
disease (SCD). This study explored the transition perspectives of adolescents with SCD …

[HTML][HTML] Integration of mobile health into sickle cell disease care to increase hydroxyurea utilization: protocol for an efficacy and implementation study

JS Hankins, N Shah, L DiMartino… - JMIR research …, 2020 - researchprotocols.org
Background: Hydroxyurea prevents disease complications among patients with sickle cell
disease (SCD). Although its efficacy has been endorsed by the National Health Lung and …