Systematic and meta-analytic review: medication adherence among pediatric patients with sickle cell disease
K Loiselle, JL Lee, L Szulczewski… - Journal of Pediatric …, 2016 - academic.oup.com
Objective To provide a comprehensive summary (systematic review) of medication
adherence rates by assessment method and medication type for pediatric patients with …
adherence rates by assessment method and medication type for pediatric patients with …
Technology access and smartphone app preferences for medication adherence in adolescents and young adults with sickle cell disease
SM Badawy, AA Thompson… - Pediatric Blood & Cancer, 2016 - Wiley Online Library
Background Hydroxyurea is the only Food and Drug Administration approved medication for
sickle cell disease (SCD) with short‐and long‐term benefits for both morbidity and mortality …
sickle cell disease (SCD) with short‐and long‐term benefits for both morbidity and mortality …
Development and evaluation of iManage: a self‐management app co‐designed by adolescents with sickle cell disease
LE Crosby, RE Ware, A Goldstein… - Pediatric blood & …, 2017 - Wiley Online Library
Background Adolescents and young adults (AYAs) with sickle cell disease (SCD) are a
vulnerable population with high risk of morbidity that could be decreased with effective self …
vulnerable population with high risk of morbidity that could be decreased with effective self …
Self‐management interventions for children and young people with sickle cell disease: A systematic review
Background Increasing numbers of interventions are being developed to support self‐
management for children and young people (CYP) with sickle cell disease (SCD), but no …
management for children and young people (CYP) with sickle cell disease (SCD), but no …
[HTML][HTML] Development of the InCharge health mobile app to improve adherence to hydroxyurea in patients with sickle cell disease: user-centered design approach
Background Sickle cell disease (SCD) is an inherited blood disorder causing acute
complications and chronic progressive end organ damage. SCD is associated with …
complications and chronic progressive end organ damage. SCD is associated with …
Perspectives of individuals with sickle cell disease on barriers to care
Introduction Sickle cell disease (SCD) is an inherited hemoglobinopathy that predominantly
affects African Americans in the United States. The disease is associated with complications …
affects African Americans in the United States. The disease is associated with complications …
Mobile health intervention for youth with sickle cell disease: Impact on adherence, disease knowledge, and quality of life
LM Anderson, S Leonard, J Jonassaint… - Pediatric blood & …, 2018 - Wiley Online Library
Background Adherence to illness self‐management among youth with sickle cell disease
(SCD) positively impacts health outcomes and decreases overall healthcare costs. Despite …
(SCD) positively impacts health outcomes and decreases overall healthcare costs. Despite …
Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study
Hydroxyurea is an efficacious treatment for sickle cell disease (SCD), but adoption is low
among individuals with SCD. The objective of this study was to examine barriers to patients' …
among individuals with SCD. The objective of this study was to examine barriers to patients' …
Transition from pediatric to adult care in sickle cell disease: perspectives on the family role
Transition from pediatric to adult care poses challenges for adolescents with sickle cell
disease (SCD). This study explored the transition perspectives of adolescents with SCD …
disease (SCD). This study explored the transition perspectives of adolescents with SCD …
[HTML][HTML] Integration of mobile health into sickle cell disease care to increase hydroxyurea utilization: protocol for an efficacy and implementation study
Background: Hydroxyurea prevents disease complications among patients with sickle cell
disease (SCD). Although its efficacy has been endorsed by the National Health Lung and …
disease (SCD). Although its efficacy has been endorsed by the National Health Lung and …