Commentary: Strength-based co-design that EMPOWERs–Lessons from codesigning with older adults

B Figueiredo, T Aleti, DM Martin, M Reid… - Journal of Services …, 2023 - emerald.com
Purpose This study aims to address the existing gap in co-design frameworks by introducing
the EMPOWER framework, a strength-based co-design methodological approach …

Correlates of attendance at community engagement meetings held in advance of bio-behavioral research studies: A longitudinal, sociocentric social network study in …

B Kakuhikire, EN Satinsky, C Baguma… - PLoS …, 2021 - journals.plos.org
Background Community engagement is central to the conduct of health-related research
studies as a way to determine priorities, inform study design and implementation, increase …

[HTML][HTML] Rural Research Network to engage rural and minority community members in translational research

PA McElfish, R Liston, V Smith, AK Norris… - Journal of Clinical …, 2023 - ncbi.nlm.nih.gov
Background: To address the high prevalence of health disparities and lack of research
opportunities among rural and minority communities, the University of Arkansas for Medical …

Training researchers in dissemination of study results to research participants and communities

J Cunningham-Erves, E Stewart, J Duke… - Translational …, 2021 - academic.oup.com
Dissemination of research beyond the academic community is an ethical responsibility of
researchers and necessary in translational research to help ensure the uptake of research …

Dissemination protocol for community-based participatory research partnerships with Marshallese Pacific Islanders in Arkansas

RS Purvis, CR Long, LP James, K Kimminau… - … in Community Health …, 2021 - muse.jhu.edu
Background: The Pacific Islander population in the United States (US) has rapidly increased
since 2000, especially in southern states like Arkansas where the largest population of …

Improving research dissemination to Black sexual minority men: development of a community-led and theory-based dissemination plan

S Sawyer, SM Grieb… - Health promotion …, 2023 - journals.sagepub.com
Background. Although research dissemination to participants and community stakeholders
is a fundamental component of translational research, it rarely occurs. The objective of this …

Ethical considerations for sharing aggregate results from pragmatic clinical trials

SR Morain, A Brickler, J Ali, PP O'Rourke… - Clinical …, 2024 - journals.sagepub.com
A growing literature has explored the ethical obligations and current practices related to
sharing aggregate results with research participants. However, no prior work has examined …

[HTML][HTML] Nephrologists' Views on a Workflow for Returning Genetic Results to Research Participants

R Weiss, HM Rasouly, M Marasa, H Fernandez… - Kidney International …, 2024 - Elsevier
Introduction Returning research-based genetic results (gRoR) to participants in nephrology
research can improve care; however, the practice raises implementational questions and no …

Participatory research practices with autistics

M Bennett, E Goodall - Addressing underserved populations in autism …, 2022 - emerald.com
This chapter outlines several approaches that researchers can use to help them conduct
research that respects and includes autistic participants. It begins by highlighting some of …

Planning for the End at the Beginning: A Lesson in Sharing Research Findings of a Community-based COVID-19 Seroprevalence Survey

AM Trolard, E Hickner, VV Anwuri, KJ Johnson… - medRxiv, 2023 - medrxiv.org
Introduction Sharing research findings with participants is important but challenging. We
evaluated a plan to share findings with participants of a COVID-19 seroprevalence project …