Health related quality of life in children with sickle cell disease: A systematic review and meta-analysis

M Stokoe, HM Zwicker, C Forbes, NELH Abu-Saris… - Blood reviews, 2022 - Elsevier
This review had three aims: 1) describe the measures used to assess health-related quality
of life (HRQL) in pediatric patients diagnosed with sickle cell disease (SCD); 2) document …

[HTML][HTML] Quality of life in adults with sickle cell disease: an integrative review of the literature

SLF Freitas, ML Ivo, MS Figueiredo… - Revista Brasileira de …, 2018 - SciELO Brasil
Objective: To identify the available evidence in the literature on health-related quality of life
in adults with sickle cell disease. Method: integrative review of MEDLINE, CUMED, LILACS …

[HTML][HTML] Health-related quality of life of children and adolescents with sickle cell disease in the Middle East and North Africa region: A systematic review

S Pandarakutty, K Murali, J Arulappan… - Sultan Qaboos …, 2020 - ncbi.nlm.nih.gov
Sickle cell disease (SCD) can significantly impair the health-related quality of life (HRQOL)
of children and adolescents. This review aimed to assess current evidence regarding the …

The daily experiences of adolescents in Lebanon with sickle cell disease

M Atoui, LK Badr, TD Brand, R Khoury… - Journal of Pediatric …, 2015 - Elsevier
Objectives Despite the psychosocial and physical consequences associated with sickle cell
disease (SCD), the daily lived experience of adolescents diagnosed with this disease is a …

Effectiveness of nurse led intervention on health related quality of life among children with sickle cell disease in Oman: A pilot study

S Pandarakutty, K Murali, J Arulappan… - Advances in …, 2019 - Wiley Online Library
Introduction. The children with Sickle Cell Disease (SCD) generally have poor Health
Related Quality of Life (HRQOL). The study aimed to evaluate the effectiveness of nurse led …

Health-related quality of life of children and adolescents with sickle cell disease: An evolutionary concept analysis

S Pandarakutty, J Arulappan - Applied Nursing Research, 2024 - Elsevier
Abstract The concept of Health-Related Quality of life (HRQOL) of children and adolescents
with Sickle cell disease (SCD) is not clearly understood due to the lack of available studies …

Saudi SCD patients' symptoms and quality of life relative to the number of ED visits

AE Ahmed, AS Alaskar, DK McClish, YZ Ali… - BMC Emergency …, 2016 - Springer
Background Individuals living with sickle cell disease (SCD) have significantly increased
emergency department (ED) use compared to the general population. In Saudi Arabia …

Health-Related Quality of Life and Service Barriers among Adults with Sickle Cell Disease in Saudi Arabia

NA Al Sayigh, MM Shafey, AA Alghamdi… - Ethiopian Journal of …, 2023 - ajol.info
Background: The burden of sickle cell disease (SCD) is highin Saudi Arabia, with a
significant impact on patients' quality of life (QoL). This study aimed to assess the health …

Health-related quality of life in sickle cell disease subjects in Benin City, Nigeria

B Nwogoh, C Ofovwe, C Omoti - African Journal of Medical and Health …, 2016 - go.gale.com
Background: Sickle cell disease (SCD) is a chronic disease associated with increased
morbidity and mortality. Hemoglobinopathies are the most prevalent genetic disease …

Qualidade de vida em adultos com doença falciforme: revisão integrativa da literatura

SLF Freitas, ML Ivo, MS Figueiredo… - Revista Brasileira de …, 2018 - SciELO Brasil
Objetivo: Identificar as evidências disponíveis na literatura sobre qualidade de vida
relacionada à saúde em adultos com doença falciforme. Método: revisão integrativa nas …