Sibling perceptions of living with a young person with D own syndrome or autism spectrum disorder: An integrated review

B Mandleco, AEM Webb - Journal for Specialists in Pediatric …, 2015 - Wiley Online Library
Purpose This integrative review synthesized current information from 28 research articles
meeting inclusion criteria that examined sibling experiences when living with a young …

[HTML][HTML] The other sibling: a systematic review of the mental health effects on a healthy sibling of a child with a chronic disease

MGQ Mariñez, M Chakkera, N Ravi, R Ramaraju… - Cureus, 2022 - ncbi.nlm.nih.gov
Abstract The Center for Disease Control and Prevention (CDC) defines chronic diseases
broadly as conditions that last over one year and require ongoing medical attention or limit …

An invisible patient: Healthcare professionals' perspectives on caring for adolescents and young adults who have a sibling with cancer

M Franklin, P Patterson, KR Allison… - European journal of …, 2018 - Wiley Online Library
The impact of a young person's cancer diagnosis extends to siblings, yet support services to
address siblings' needs are limited. This study explores healthcare professionals'(HCPs') …

Living with a sibling who suffers from an eating disorder: a pilot interview study

C Callio, SA Gustafsson - Journal of Multidisciplinary Healthcare, 2016 - Taylor & Francis
Background and objective Having a sibling who suffers from an eating disorder (ED) has a
profound effect on healthy siblings' own health, quality of life and family relationships, yet …

[HTML][HTML] Psychosocial impact on siblings of patients with developmental and epileptic encephalopathies

LD Bailey, L Schwartz, T Dixon-Salazar, MA Meskis… - Epilepsy & Behavior, 2020 - Elsevier
Objective Caring for children with developmental and epileptic encephalopathies (DEEs)
places substantial demands on the entire family unit, including siblings. The Sibling Voices …

The psychosocial stressors of siblings of people with experiences of psychosis (SOPEP): A systematic narrative review across cultures

E Izon, J Radez, MTD Knight - Clinical Psychology & …, 2024 - Wiley Online Library
Objectives This study aimed to synthesise the psychosocial stressors of siblings of people
with experiences of psychosis (SOPEP). Understanding the specific needs of siblings across …

Evaluating strategies to manage and endure challenging behaviors in mucopolysaccharidoses

N Grant - Orphanet Journal of Rare Diseases, 2021 - Springer
The mucopolysaccharidoses (MPS) are a group of rare, genetic, lysosomal storage
disorders characterized by progressive, multisystemic accumulation of glycosaminoglycans …

The impact of individuals with profound intellectual and multiple disabilities on peer relationships of typically developing siblings

J Niedbalski - Journal of Intellectual Disabilities, 2024 - journals.sagepub.com
Introduction/background This study aims to determine the impact of a person with profound
intellectual and multiple disabilities on peer relationships of their siblings. Methods …

Children as next of kin in higher education: an exploratory cross-sectional study among health, social care, and teacher education programs

K Almendingen, AK Bergem… - Journal of …, 2021 - Taylor & Francis
Introduction Children who are “next of kin”(ie, sick/dying/addicted/imprisoned close relatives)
are at increased risk for health consequences. Health professionals in Norway are required …

Sibling cooperative and externalizing behaviors in families raising children with disabilities

C Platt, SO Roper, B Mandleco, D Freeborn - Nursing Research, 2014 - journals.lww.com
Background Raising a child with a disability (CWD) in the home is increasing across the
globe. Because of caregiver burden and the complexity of care, there is growing concern for …