[HTML][HTML] Recognizing patient partner contributions to health research: a systematic review of reported practices

G Fox, MM Lalu, T Sabloff, SG Nicholls, M Smith… - Research Involvement …, 2023 - Springer
Background Patient engagement in research refers to collaboration between researchers
and patients (ie, individuals with lived experience including informal caregivers) in …

Prevalence of patient partner authorship and acknowledgment in child health research publications: an umbrella review

S Vanderhout, DP Richards, N Butcher… - Journal of Clinical …, 2023 - Elsevier
Objectives Children and families are increasingly involved as equal partners in child health
research, however, considerations around authorship have received little attention and there …

Bridging the gap between urological research and patient understanding: the role of large language models in automated generation of layperson's summaries

MB Eppler, C Ganjavi, JE Knudsen, RJ Davis… - Urology …, 2023 - auajournals.org
Abstract Introduction: This study assessed ChatGPT's ability to generate readable, accurate,
and clear layperson summaries of urological studies, and compared the performance of …

[HTML][HTML] Hidden in plain sight? Identifying patient-authored publications

J Oliver, D Lobban, L Dormer, J Walker… - Research Involvement …, 2022 - Springer
Background Patient advocates are increasingly authoring peer-reviewed publications that
could enhance patient care and understanding of the lived experience. Although patient …

The nature and impact of patient and public involvement in cancer prevention, screening and early detection research: A systematic review

RJ Bergin, CE Short, N Davis, J Marker, MT Dawson… - Preventive …, 2023 - Elsevier
Patient and public involvement can produce high-quality, relevant research that better
addresses the needs of patients and their families. This systematic review investigated the …

[HTML][HTML] Toward more mindful reporting of patient and public involvement in healthcare

B Scholz, A Bevan - Research involvement and engagement, 2021 - Springer
Understanding of the value of patient and public involvement in research has grown in
recent years, but so too has uncertainty about how best to practice and how best to report …

[HTML][HTML] Producing knowledge together: a participatory approach to synthesising research across a large-scale collaboration in Aboriginal and Torres Strait Islander …

KP Conte, A Laycock, J Bailie, E Walke, L Onnis… - Health Research Policy …, 2024 - Springer
Background Despite that stakeholder participation in evidence synthesis could result in
more useful outcomes, there are few examples of processes that actively involve them in …

Patient authorship of medical research publications: An evolution, revolution, and solution?

KL Woolley, SR Stones, R Stephens… - Learned …, 2024 - Wiley Online Library
Key points Patient authorship is a new topic in medical publishing, with the number of
patient‐authored publications growing rapidly. Publication stakeholders (eg, editors …

Perspectives on the production, and use, of rapid evidence in decision making during the COVID-19 pandemic: a qualitative study

B Clyne, L Hynes, C Kirwan, M McGeehan… - BMJ Evidence-Based …, 2023 - ebm.bmj.com
Objectives To describe perceptions of providing, and using rapid evidence, to support
decision making by two national bodies (one public health policy and one front-line clinical …

A virtual, multi-session workshop model for integrating patient and public perspectives in research analysis and interpretation

N Oravec, ASH Schultz, B Bjorklund… - International …, 2022 - journals.sagepub.com
The importance and value of engaging patients and the public as co-researchers (ie,“patient
engagement in research”) is becoming more evident, and guiding methods must be …