Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis

N Davies, L Maio, G Rait, S Iliffe - Palliative medicine, 2014 - journals.sagepub.com
Background: People with dementia do not always receive good quality end-of-life care, with
undertreated pain, aggressive medical interventions and limited access to hospice care …

[HTML][HTML] Palliative care in older people with multimorbidities: a scoping review on the palliative care needs of patients, carers, and health professionals

L Llop-Medina, Y Fu, J Garcés-Ferrer… - International journal of …, 2022 - mdpi.com
Although numerous studies have been conducted previously on the needs of cancer
patients at the end of their life, there is a lack of studies focused on older patients with non …

A decision aid to support family carers of people living with dementia towards the end‐of‐life: coproduction process, outcome and reflections

N Davies, EL Sampson, E West, T DeSouza… - Health …, 2021 - Wiley Online Library
Background Family carers of people living with dementia often need support with making
decisions about care. Many find end‐of‐life care decisions particularly difficult. The aim of …

Spouse caregivers of people with advanced dementia in nursing homes: A longitudinal narrative study

J Hennings, K Froggatt, S Payne - Palliative medicine, 2013 - journals.sagepub.com
Background: Dementia is a life limiting illness and is becoming a major cause of death in
developed countries. Many people with dementia die in nursing homes or long-term …

Barriers to the provision of high‐quality palliative care for people with dementia in E ngland: a qualitative study of professionals' experiences

N Davies, L Maio, K Vedavanam… - Health & social care …, 2014 - Wiley Online Library
Approaches to palliative care that were originally developed for people with cancer are now
being adopted for people with dementia, as a response to many reports of poor‐quality care …

Family caregivers' conceptualisation of quality end-of-life care for people with dementia: a qualitative study

N Davies, G Rait, L Maio, S Iliffe - Palliative medicine, 2017 - journals.sagepub.com
Background: People with dementia have been described as the 'disadvantaged dying'with
poor end-of-life care. Towards the end of life, people with dementia cannot report on the …

Thematic analysis of blog narratives written by people with Alzheimer's disease and other dementias and care partners

K Kannaley, S Mehta, B Yelton, DB Friedman - Dementia, 2019 - journals.sagepub.com
Limited research takes a socio-biographical approach to study the experiences and
perspectives of individuals affected by Alzheimer's disease and related dementias. The …

Quality palliative care for cancer and dementia in five European countries: some common challenges

N Davies, L Maio, JR Paap, E Mariani… - Aging & Mental …, 2014 - Taylor & Francis
Objectives: There is a growing consensus worldwide that palliative care needs to be both
more inclusive of conditions other than cancer and to improve. This paper explores some …

Caring for a family member or friend with dementia at the end of life: A scoping review and implications for palliative care practice

TR Broady, F Saich, T Hinton - Palliative Medicine, 2018 - journals.sagepub.com
Background: Although people with dementia receive substantial care from informal sources,
there is limited research available that investigates how these carers experience end-of-life …

Substitute decision makers' experiences of making decisions at end of life for older persons with dementia: A systematic review and qualitative meta-synthesis

SJ Cresp, SF Lee, C Moss - Dementia, 2020 - journals.sagepub.com
Background Substitute decision makers are important for people with advanced dementia,
particularly at the end of life. Substitute decision makers report issues in providing support …