[HTML][HTML] The association between patient-reported outcomes (PROs) and patient participation in chronic care: A scoping review

J Eriksen, A Bygholm, P Bertelsen - Patient Education and Counseling, 2022 - Elsevier
Abstract Objectives Patient-reported outcomes (PROs) are increasingly applied in chronic
care due to their many functionalities and synergies with current healthcare policies. The …

Lessons from the CONSCIOUS-1 Study

AJ Schupper, ME Eagles, SN Neifert, J Mocco… - Journal of clinical …, 2020 - mdpi.com
After years of research on treatment of aneurysmal subarachnoid hemorrhage (aSAH),
including randomized clinical trials, few treatments have been shown to be efficacious …

Core outcomes for subarachnoid haemorrhage

CR Andersen, J Presseau, V Saigle, N Etminan… - The Lancet …, 2019 - thelancet.com
In his Comment, 1 Gavin Giovannoni questions the equipoise of obtain ing class 1 evidence
to inform early relapsingremitting multiple scler osis treatment via our on going clinical trials …

Patient-reported outcome measures in subarachnoid hemorrhage: a systematic review

E Nobels-Janssen, PJ van der Wees, WIM Verhagen… - Neurology, 2019 - AAN Enterprises
Objective Patient-reported outcomes (PROs) are aspects of a patient's health status and are
considered important for stimulating patient-centered care. Current outcome measures in …

Methodological quality of multivariate prognostic models for intracranial haemorrhages in intensive care units: a systematic review

J Simon-Pimmel, Y Foucher, M Léger, F Feuillet… - BMJ open, 2021 - bmjopen.bmj.com
Objectives Patients with severe spontaneous intracranial haemorrhages, managed in
intensive care units, face ethical issues regarding the difficulty of anticipating their recovery …

Made to measure—selecting outcomes in aneurysmal subarachnoid hemorrhage research

CR Andersen, SW English, A Delaney - Frontiers in Neurology, 2022 - frontiersin.org
There has been limited new high-level evidence generated to guide aneurysmal
subarachnoid hemorrhage (aSAH) management in the past decade. The choice of outcome …

Patient relevance of the modified rankin scale in subarachnoid hemorrhage research: an international cross-sectional survey

N Niznick, V Saigle, ML Marti, J Laframboise, X Zha… - Neurology, 2023 - AAN Enterprises
Background and Objectives There is significant heterogeneity in the reporting of outcome
measures in aneurysmal subarachnoid hemorrhage (aSAH) research. The modified Rankin …

[HTML][HTML] Occupational performance one to five years after aneurysmal subarachnoid haemorrhage: a cohort study

M Kessner, J Mehrholz, SH Mørkve… - Journal of Rehabilitation …, 2024 - ncbi.nlm.nih.gov
Objective To report on the self-perceived occupational performance of patients with
aneurysmal subarachnoid haemorrhage and examine the associations between …

Aneurysmal subarachnoid hemorrhage and clinical decision-making: a qualitative pilot study exploring perspectives of those directly affected, their next of kin, and …

B Göcking, N Biller-Andorno, G Brandi… - International Journal of …, 2023 - mdpi.com
Background: Exploring the experience and impact of aneurysmal subarachnoid hemorrhage
(aSAH) from three perspectives, that of those directly affected (AFs), their next of kin (NoK) …

Engaging Patients and Caregivers in an Early Health Economic Evaluation: Discerning Treatment Value Based on Lived Experience

M Wilson, K Thavorn, T Hawrysh, ID Graham… - …, 2022 - Springer
Background Traditionally, economic evaluations have engaged clinicians and policymakers;
however, patients and their caregivers have insight that can ensure that the economic …