Postacute sequelae of SARS-CoV-2 in children

S Rao, RS Gross, S Mohandas, CR Stein, A Case… - …, 2024 - publications.aap.org
The coronavirus disease 2019 (COVID-19) pandemic has caused significant medical, social,
and economic impacts globally, both in the short and long term. Although most individuals …

Characterizing long COVID in children and adolescents

RS Gross, T Thaweethai, LC Kleinman, JN Snowden… - JAMA, 2024 - jamanetwork.com
Importance Most research to understand postacute sequelae of SARS-CoV-2 infection
(PASC), or long COVID, has focused on adults, with less known about this complex …

Care coordination of children with neurodevelopmental disabilities and medical complexity during the COVID‐19 pandemic: Caregiver experiences

G Currie, D Materula, N Gall, G Lachuk… - Child: Care, Health …, 2023 - Wiley Online Library
Background The COVID‐19 pandemic and subsequent public health restrictions created
significant challenges for children with neurodevelopmental disabilities with medical …

The Impact of COVID-19 on Children and Adolescents with Chronic Illness

F Nearchou, C Flinn - The COVID-19 Aftermath: Volume I: Ongoing …, 2024 - Springer
Children and adolescents living with chronic illness may already be at a disadvantage when
compared to their healthy peers in achieving developmental milestones as they are required …

Trauma-informed leadership in quality improvement: what we learned from practicing in a pandemic

BV Houlihan, E Ethier, R Veerakone, M Eaves… - …, 2024 - publications.aap.org
In 2020, midway through the Collaborative Improvement and Innovation Network to Advance
Care for Children with Medical Complexity project, the coronavirus disease 2019 pandemic …

[HTML][HTML] Caring for children with new medical technology at home: parental perspectives

N Pitch, A Shahil, S Mekhuri, M Ambreen… - BMJ paediatrics …, 2023 - ncbi.nlm.nih.gov
Objectives This qualitative descriptive study explores the experiences of family caregivers
(FCs) of children with medical complexity who are initiated on new medical technology in the …

Exploring the experience of family caregivers of children with medical complexity during COVID-19: a qualitative study

N Pitch, L Davidson, S Mekhuri, R Patel, S Patel… - BMC pediatrics, 2023 - Springer
Background and objectives Children with medical complexity have been disproportionately
impacted by the COVID-19 pandemic and the associated changes in healthcare delivery …

“Falling off a cliff”: mothering disabled children through the pandemic and beyond

G Currie, AD Kirby, J Lebsack… - Journal of the …, 2023 - jarm.journals.yorku.ca
The COVID-19 pandemic has taken a disproportionate toll on the lives of mothers of
disabled children. These children have complex needs that require health, educational, and …

Short-Term Powered Mobility Intervention is Associated With Improvements in Development and Participation for Young Children with Cerebral Palsy: A Randomized …

HA Feldner, SW Logan, S Otieno, A Fragomeni… - Physical …, 2024 - academic.oup.com
Objective The objective of this study was to evaluate the effects of 2 short-term powered
mobility interventions across developmental domains, participation, and perceptions of …

Perceived social support and characteristics of social networks of families with children with special healthcare needs following the COVID-19 pandemic

A Geweniger, M Barth, A Haddad, H Högl… - Frontiers in Public …, 2024 - frontiersin.org
Background Children with special healthcare needs (CSHCN) require more support than the
average of their peers. Support systems for CSHCN were particularly affected by pandemic …