The main aims in the care of individuals with amyotrophic lateral sclerosis (ALS) are to
minimize morbidity and maximize quality of life. Although no cure exists for ALS, supportive …

Background Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease, is a
fatal neurodegenerative disease. Neuromuscular respiratory failure is the most common …

In this review, we summarize the most important recent developments in the treatment of
amyotrophic lateral sclerosis (ALS). In terms of disease-modifying treatment options, several …

Living with a person with amyotrophic lateral sclerosis (ALS) is a complex and difficult
experience. Most research involves only the primary caregiver and uses a quantitative …

Sleep disorders in amyotrophic lateral sclerosis (ALS) present a significant challenge to the
management of patients. Issues include the maintenance of adequate ventilatory status …

Background People with motor neuron disease (pwMND) are routinely offered gastrostomy
feeding tube placement and (non‐invasive and invasive) ventilation to manage the …

Background: Despite being a terminal neurodegenerative disease, the role of palliative care
is less recognised for motor neurone disease than for other life-limiting conditions …

Background: Amyotrophic lateral sclerosis (ALS) presents many transitions for
persons/people with ALS (PwALS) and their caregivers. Transitions are passages from one …

Background/objectives The role of palliative care in the support of patients with
neuromuscular disorders (NMDs) is generally recognised in spite of the scarcity of condition …

Patients with myotonic dystrophy type I (DM1) may develop nocturnal hypoventilation,
requiring non-invasive ventilation. Data on long-term adherence to non-invasive ventilation …