Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

OL Aiyegbusi, J Roydhouse, SC Rivera… - Nature …, 2022 - nature.com
Patient-reported outcomes (PROs) are used in clinical trials to provide evidence of the
benefits and risks of interventions from a patient perspective and to inform regulatory …

Conducting qualitative research to respond to COVID-19 challenges: Reflections for the present and beyond

S Tremblay, S Castiglione, LA Audet… - International …, 2021 - journals.sagepub.com
The global response to mitigate the spread of the COVID-19 pandemic brought about
massive health, social and economic impacts. Based on the pressing need to respond to the …

[HTML][HTML] Mental health and wellbeing interventions for care-experienced children and young people: Systematic review and synthesis of process evaluations

S MacDonald, R Trubey, J Noyes, S Vinnicombe… - Children and Youth …, 2024 - Elsevier
Background The mental health and well-being of care-experienced children and young
people remains a concern. Despite a range of interventions, the existing evidence base is …

The research burden of randomized controlled trial participation: a systematic thematic synthesis of qualitative evidence

N Naidoo, VT Nguyen, P Ravaud, B Young, P Amiel… - BMC medicine, 2020 - Springer
Background Participation in randomized controlled trials (RCTs) may be quite demanding
and could represent an important burden for patients. We aimed to explore this research …

Influence of ecological momentary assessment study design features on reported willingness to participate and perceptions of potential research studies: an …

JM Smyth, DR Jones, CKF Wen, FT Materia… - BMJ open, 2021 - bmjopen.bmj.com
Objective Intensive ambulatory assessment, such as ecological momentary assessment
(EMA), is increasingly used to capture naturalistic patient-reported outcomes. EMA design …

Rapid implementation mapping to identify implementation determinants and strategies for cervical cancer control in Nigeria

IU Itanyi, C Viglione, AF Rositch, JO Olawepo… - Frontiers in Public …, 2023 - frontiersin.org
Background Cervical cancer constitutes a huge burden among women in Nigeria,
particularly HIV-infected women. However, the provision and uptake of cervical cancer …

Transcranial magnetic stimulation for long-term smoking cessation: preliminary examination of delay discounting as a therapeutic target and the effects of intensity and …

A Shevorykin, E Carl, MC Mahoney… - Frontiers in human …, 2022 - frontiersin.org
Background Repetitive transcranial magnetic stimulation (rTMS) is a novel treatment for
smoking cessation and delay discounting rate is novel therapeutic target. Research to …

[HTML][HTML] Web-based intervention for family carers of persons with dementia and multiple chronic conditions (My Tools 4 Care): pragmatic randomized controlled trial

W Duggleby, J Ploeg, C McAiney, S Peacock… - Journal of medical …, 2018 - jmir.org
Background My Tools 4 Care (MT4C) is a Web-based intervention that was developed
based on the transitions theory. It is an interactive, self-administered, and portable toolkit …

Mechanisms by which cultural-centric narrative influences interest in ADRD research among African American adults

JH Lingler, D Ren, LK Tamres, ML Knox… - The …, 2023 - academic.oup.com
Abstract Background and Objectives Insufficient ethnoracial diversity is a pervasive
challenge in Alzheimer's disease (AD) research. The Recruitment Innovations for Diversity …

Neurophysiological changes in the first year after cell transplantation in sub-acute complete paraplegia

AJ Santamaria, FD Benavides, PM Saraiva… - Frontiers in …, 2021 - frontiersin.org
Neurophysiological testing can provide quantitative information about motor, sensory, and
autonomic system connectivity following spinal cord injury (SCI). The clinical examination …