Background Numerous frameworks for supporting, evaluating and reporting patient and
public involvement in research exist. The literature is diverse and theoretically …

Background Over the last 10 years, patient engagement in health research has emerged as
the next evolution in healthcare research. However, limited evidence about the clear role …

Background Patient and public involvement (PPI) is a prerequisite for many funding bodies
and NHS research ethics approval. PPI in research is defined as research carried out with or …

There has been a substantial increase in research activity on autism during the past decade.
Research into effective ways of responding to the immediate needs of autistic people is …

Plain English summary There have been many attempts to improve how healthcare services
are developed and delivered. Despite this, we know that there are many gaps and …

Background The language of “participant-driven research,”“crowdsourcing” and “citizen
science” is increasingly being used to encourage the public to become involved in research …

Background Involvement of mental health‐care patients in the decision‐making processes is
considered to be an ethical requirement. Health‐care systems worldwide are increasingly …

Background Knowledge mobilisation requires the effective elicitation and blending of
different types of knowledge or ways of knowing, to produce hybrid knowledge outputs that …

Background There has been increasing evidence and debate on palliative care research
priorities and the international research agenda. To date, however, there is a lack of …

Introduction: Autistic advocates and their supporters have long argued that conventional
research practices provide too few opportunities for genuine engagement with autistic …