Characterizing medical decision‐making in sickle cell disease during childhood: Qualitative perspectives of caregivers
AO Blakey, CM Amaro, JS Eilenberg… - Pediatric Blood & …, 2024 - Wiley Online Library
Introduction Sickle cell disease (SCD) is the most common genetic disorder among children.
As the most common type of SCD, sickle cell anemia (SCA) is associated with severe …
As the most common type of SCD, sickle cell anemia (SCA) is associated with severe …
Food insecurity and quality of life in patients with sickle cell disease
WS Darlington, S Syed, K Wroblewski… - Pediatric Blood & …, 2024 - Wiley Online Library
Little is known about the relationship between quality of life (QOL) and food insecurity (FI)
among patients with sickle cell disease (SCD). We hypothesized FI is associated with lower …
among patients with sickle cell disease (SCD). We hypothesized FI is associated with lower …
Commentary: Empirically derived profiles of neurocognitive functioning in youth and young adults with sickle cell disease
JD Johnston, J Schatz… - Journal of Pediatric …, 2024 - academic.oup.com
Youth with sickle cell disease (SCD) experience increased risk for cerebrovascular disease
and neurocognitive impairments that typically worsen with age (Schatz & McClellan, 2006) …
and neurocognitive impairments that typically worsen with age (Schatz & McClellan, 2006) …